Health Organization for Pudendal Education

Hi Nyt,
I am so happy to read how the ketamine relieved your leg pain. When I read you cried in the shower out of joy for feeling somewhat normal again, I cried too! I am so happy for you and wish you continued success!

Ever since I developed this horrible condition I have tried to educate myself through this website. It seems that from everything I've read that with pne you get progressively worse. I have also read with pn (without entrapment) you have a chance of getting better through lifestyle changes and other...

Thanks for the info. How far can you open the seat part? Just wondering if wide enough for perineum to be free? I watched the you tube video, but the man did not open the seat wide at all.
thanks

Hi Garth, You are so kind to let us know all this useful information that has helped you. I'd be interested in trying the creme. As I told you (and believe me I have tried so many times) my Dr will not give me anything that he has not thought of himself. So can you discuss how I can get some of this...

Thanks Shawn for all the helpful info you provide to this site.

Hi Garth, Thanks for sharing your helpful information. Do you need a prescription to get this medication? I don't think my Dr. would prescribe anything that wasn't his own idea. He is a real control freak, and I live in a real rural area where there is no real choice when it comes to doctors. Luckil...

Sunil we care about you and we don't think you are a horrible needy person! I also think you're wrong when you say you have nothing to offer another person. You are kind, (I have read your posts) You reach out to help others. I'm sure you have a lot of compassion and understanding for others conside...

Lernica,

My pelvis is at the same angle (more or less) as it would be if I was on a recliner.

Hi lightmail, I do not have a recliner but when my husband drives we have my seat all the back like a recliner. This angle does not cause me any pain while I'm in that position or afterwards. My feet are on the floor while you and birdlife have the comfort of having your legs raised :D I take a book...

Hi thanks for keeping us updated and wish you continued success! :D No burning when urinating. I’m not going to test the sitting pain much and will just do it as little as possible for a while. No need to potentially exacerbate it although the Dr. says it is no longer trapped and I can’t injure it b...