Health Organization for Pudendal Education

Hello jogom, I just wrote a long reply about me and my experience, pressed the "submit" button - and it took me to the sign in page. So okay, I signed in again... and when it came bake to this page there was NOT"HING HERE!!!!! I've had my pump for 5 years in December!! And I've been c...

Carl, I LOVE that numb feeling!!!! It is a miracle to not feel that knife pain that slashed into the left side of my most private area.... and sometimes the pain was so intense, along with my bladder pain, that I could not stand being awake. I had to medicate myself to sleep! I used to pray that a d...

Hi Quilter, as far as your questions.... I don't believe you develop a tolerance like you do with oral narcotics. I do know that the amount of medication needed when delivered directly to the spinal fluid is 1/300 of what would be needed if taken orally. That greatly reduces the effect of the drugs ...

River, I can tell you about my trial. (This is my memory of it, as accurately as possible!) Dr. Prager administered my trial himself. After inserting the catheter into my spine under CT-guidance (I was on my tummy on a scanner while he watched in the monitor) I was moved to a hospital bed and closel...

Hi I have a blog with lots of this information about the pump, including links to the NIH information on pain pumps and off-label medications like bupivacaine and clonidine at: www.icandpne.wordpress.com I sent you a PM with answers to your questions. I think it is wonderful that we can exchange inf...

Thanks, and best wishes on your pre-op and surgery! It sounds like it was moved up from May, right? Once you know where they are placing the catheter I would be very interested in hearing more about it. My understanding from your previous posts was that it was going to be placed in the pudendal cana...

I am very interested in this! I read your story on a different thread and will continue watching for your posts. As a pudendal pain patient with a "standard" intrathecal pump with catheter going to the spinal canal, I am excited about this new procedure. Have you found anyone who has had t...

I read about your pump trial and will stay tuned! It sounds WONDERFUL!!!

I am sooo hopeful and happy for you!!! Thanks for letting me know about this! If you have good results with your surgery I will show my doctor and see if it would be indicated for me! The pump/anesthetic in my spinal canal has been so effective it changed my life, but this sounds even better!! I wou...

Hello, gsystems I wish all the best for you. Please let us know how you are doing after the surgery. I got a lot of support here during those difficult first months, all the way past the 2-year mark. If you are better at the 1 and 2 year mark please come back and post here. Likewise, if you don't fe...