Health Organization for Pudendal Education

Hi I'm so sorry but I don't know the answer! I've never used a ketamine suppository - my only experience with it was a 3-day infusion! I hope your positive trend continues and I'm sorry the pump hasn't delivered much help for you like it has for me. It just goes to show how different our bodies and ...

My dear friends
Let's cheer for every sufferer who crawls out from the devastation of this disease.
Does it matter how, when, what or why as long as a human being is able to smile and enjoy life again?

Live and let live! I love you guys!

You rock, Ezer! Thank you for your many contributions to this group over the years. I also appreciate the information on mind-body practices to ease and eliminate pain. I have been practicing ever since you told me about your success, and find that telling my brain I am not in pain (over and over if...

Blossum and Barb, I just read your comments about success with your PNE surgeries, and I want to let you know I'm delighted! I know so many sad stories, where people I have come to know and care about are suffering worse after their surgeries, (plus my own failed surgeries with Dr. Hibner and Dr. De...

That's a shame that Dave was cut out of the forum. When I read back over the posts, it sounded more like he was responding to questions posed to him, not advertising. It was only when he was asked several times and specifically how to go about doing what he did, that he revealed he had started teach...

I concur with Ezer. My experience and the experiences of PNE friends I made on this board demonstrate the failure of surgery. I have said before that I know at least 5 women who had failed surgeries. Upon further review, I can count more than that -- at least 7 women and 3 men who have had failed su...

Violet, thank you! Your words mean a lot to me. I posted a response to you on the other thread: http://www.pudendalhope.info/forum/viewtopic.php?f=74&t=6165&p=45735&e=45735 and will post it again here... I will read your words again, when I am hesitating about sharing my deepest feelings...

Thanks Stephanies! I appreciate you telling me that. It's kind of scary putting myself out there like I am but I do it in case there is someone out there suffering as bad as I was a couple of years ago... I just posted another long post here that continues about this topic and more... http://www.pud...

Violet, it is really good that you bring up these issues. There are so many risks in treatments for our kind of pain. It is something each individual has to come to grips with and we are all different. What works for one person does not necessarily work for another. I remember Larry’s story and his ...

Hi I thought I would chime in here and let you know that morphine is on the lower side in my medication mixture. The meds in my pump are: bupivacaine (same as marcaine) 20 mg - this is the upper limit because of the granuloma concern) morphine 5 mg clonidine 250 mcg hope that is helpful/of interest....