Health Organization for Pudendal Education

I wish I could do more. I wish I knew of a top pain management doctor in your area ...
did you investigate the possibility of ketamine?

Ketamine is AWESOME! It is a shift in thinking to realize that many of us are suffering with not only pelvic pain, but centralized pain, or CRPS/RSD. I had this shift when a 3-day course of ketamine completely erased my pain for 3 days. Unfortunately, I have IC. Ketamine is a bad bladder irritant, s...

That is an excellent question. I have asked Dr. Prager this and he said to tell people to call his office. I guess there is no one answer as each situation is different. (But so far I don't know of anyone personally who has started with Dr. Prager and then gone home to follow up with a different pai...

Hi Sam,
I responded to your private message but can see that you haven't "picked it up"
Do you know how to get to your private messages?
One of us would be happy to help you if that is the case!

Maybe someone who has a pain pump might develop this thread and let us know what it is all about. PLEASE respond if it has helped you Hi I just realized this thread was here! It was posted around the same time I got my pain pump... It has been over 7 months now and my life has totally changed!!! I ...

That first method I described works as follows while in a hospital (or an out-patient hospital center) the doctor injects an IV into the intrathecal space (l kind of like an epidural given to moms in labor). The IV is attached to a catheter in which he/she can put one drug like Morphine, (one metho...

Greg, I'm so glad I checked in and saw your post. I haven't been online for quite a while so it was fortunate timing. I am grateful to TIPNA for being there when I had nowhere else to go. I have made many friends between TIPNA and pudendalhope. I will plan on checking in on Feb. 4! Thank you so much.

I'm sorry it squashed down on you Poppy... I don't know if this is helpful, but I the solution we came up with was a regular padded toilet seat that goes on top of a riser. The riser doesn't have handles or anything on it... It screws down tight on the bottom half of the toilet and then the padded t...

Bobby,
I also hope you are having a positive recovery
(although at this early stage I know for me that the TG surgery was painful)
and I wish you all the best as you go through the healing process, and I hope you have success.

Violet,
How cool is this!
I must admit I always wondered how people did this ... so I am delighted to find out from you!
I am returning to my old posts and replacing my long URLs ...

THANK YOU!