Health Organization for Pudendal Education

Emily, you have my total sympathy and support too! ((((((((((((hug for Emily)))))))))))))) I use a cane because my balance is shaky and I do limp even after walking a short distance. I also have a home health aide with me and as she wears scrubs ---- so that provides visual cues of being disabled so...

Count me in on the handicap permit crowd! I have had my placard for 3 years, and originally got it at the recommendation of my urologist, and it is a lifesaver. Like A's Mommy, I am unable to walk very far (and I don't even have to worry about lifting an active two-year old up and down from a cart!)...

How awful that must have felt to come out of the grocery store, exhausted, hurting, taking care of your child, and then finding that note. It should never have happened. I've often thought about making a t-shirt that shows on the outside what it looks like on our insides. I'm so sorry sweetie. (((((...

Kate,
Add me to your cheering section. I will be sending prayers to Phoenix tonight and in the morning.
May you be one of the miracles. gentle hugs to you ((((((((((((((((Kate))))))))))))))))
-Sharon

My name is Kara. I'm Kind of scared to be here. I run the Pudendal Nerve Discussion Boards on the Interstisial Cytitis Network and also moderate or rather volunteer to oversee what happens on the board. I have taken a Haiatus for health reasons. I am very sick and need some time to myself to regrou...

A's Mommy, I wrote a big long response to your beautiful, touching poem and when I went to submit it, the forum asked me to sign in again (I guess I took too long writing it!). Anyway, when I went back to the page my response was gone! I wanted you to know how deeply it touched me. I felt the sadnes...

I don't have any experience with the ointment, but I would sell the rest of my belongings to have an On Q Pump forever!! I'm with you, Grace! I loved my "Onky" pump! (that's the nickname we gave it, LOL) - - - - - - And Ezer, thanks for the tip! I will look into that if I need to get more...

Also, the gabapentin ointment I have is labeled "Gabapentin 6% Ointment" Hope that helps! I have gabapentin ointment which works the best for that neuralgia pain on my labia and left side of the tip of my clitoris, which must be where the nerve creates havok in my situation. It is not grai...

I have gabapentin ointment which works the best for that neuralgia pain on my labia and left side of the tip of my clitoris, which must be where the nerve creates havok in my situation. It is not grainy at all, as it is compounded in a base of almond oil and something else - I am going from memory a...

Hi everyone on this thread, I feel like I am joining in on a game of ping pong! LOL I recently had surgery by Dr. Hibner and was writing what he told me from memory ... And THEN I remembered --- I HAVE IT IN WRITING from my pre-op paperwork I signed, called: CONSENT FOR PUDENDAL NEUROLYSIS. Here it ...