Health Organization for Pudendal Education

Wow Ezer, I am sorry you are being singled out, and I just don't understand it. We are all so different in our physiology and what works and doesn't work for each of us. What we have in common is that we are all suffering. If something is not working for us, and we decide to move in a different dire...

This is so much like what I went through in the years while I continued to get worse while doing pain management techniques, physical therapy and other mumbo jumbo. When I finally DID HAVE THE SURGERY, my nerve was STUCK to the sacrospinous ligament and nothing could have freed it other than cutting...

oops I double posted by mistake....

Update: I previously advocated for PN surgery here, but it did not help me and I have since deleted the post.

Wow! That's a hell of a story LottaNerve. I'm very pleased for you on your progress so far, and very sorry to hear about your friend. I bet you would have had the surgery earlier if Dr Wise hadn't put you off! By the way, where did you have your surgery done and by what method? Cheers Peaches Peach...

Oh Celeste - - Thank you for posting this! http://www.youtube.com/watch?v=3ozT8r2FBQs&feature=player_embedded I saw this video for the first time two days ago. It brought tears to my eyes. I could barely breath watching it. Why? I attended the Headache in the Pelvis (aka Wise-Anderson) clinic in...

Hi A's Mom! I have a lot of confidence in Dr. Hibner (as he was my surgeon and I know a lot of people he has helped). Even if the botox is not successful, it is an important step in the diagnostic work-up of your case. And if it is successful, it means your pain is due more to muscle tension and tig...

Oh, and the findings of my surgery were very conclusive, which was also a relief to me - they FOUND the culprit that took me down all these years! My pudendal nerve was trapped, actually adhered, or stuck, to my sacrospinous ligament near the "sacral attachment" (sacrum) by extensive scar ...

Hello! I am honored to be the first person posting in this section and am excited about this new site to help those of us with chronic pelvic pain and pudendal neuralgia and entrapment. I have been around the block, so to speak, and had to find out much of the information through extensive research,...

Hi fellow PNE'ers, I found you through TIPNA, after reading a post from Greg that suggested we come and check out our fellow Pelvic Pain site. I thought that was pretty neat, and as I posted in the Welcome section, I can use all the help and support I can get. Plus, helping others can make my day ch...