Health Organization for Pudendal Education

Hi Jason Just seen your post and felt had to respond. You seem a strong guy with plenty of support whatever your decision. Pain makes any option possible in your mind. I have had rectal pain nearly 2 years now. I am youngish guy, very young family. Last year i was told a sphincterotomy would help - ...

Thanks Catherine/Violet. You suggestions and comments really helped make sense of things. I didnt know only 1 in 10 opt for surgery, thought it was lots more. Also thought everyone gets worse in time. Has given me hope. Guess tied in with this is that not everyone who comes to this site who thinks t...

Thanks Violet, really helpful info. Before i make decision over surgery i read that there is a general worsening of symptoms as the years go by. Pain feels tough now so imagining further decline hard to contemplate. Is this correct? Also i read many on here like myself are on pain med. Is this a lif...

Hi, I am new to this site and am struggling at moment. Today i have been reading about peoples experiences with surgery for pn and if its something i should consider. It would be my last option as have explored all others and still in considerable pain. Yesterday was my darkest day yet and but for t...

Thank you to all who responded, and Gail I will check out anurex so thanks for that. I got through last night, trying to live hour by hour at moment and reminding myself of the impact me not being around will have on my children. They really are the sweetest things. The worst days are when I wake up...

Thankyou violet, that is really helpful. Can I put you on spot and ask your opinion pls. I have read some of your many helpful & insightful posts on here and you appear more knowledgable than most doctors I have met, your story is also a positive one which aim pleased to hear. Here are pros and ...

Thanks cari Feels nice to know I am ain't alone with this. Pain does crazy things with rational thinking. My children are my life, I want to live a long and happy life with them by my side. Just so tough when in this pain. Just read nantes criteria for pudendal and I apply to each one although am un...

Thank you violet. I have seen seven Specialist doctors. One said pudendal, most said not because pain came on following fissure but fissure healed over a year ago. Have had a pointless sphincterotomy and four botox treatments. Last botox gave some temp relief but now the pain is back. I had cfs many...

Hello Tonight I feel at my lowest. I have had this burning anal pain last two years. Doctors aren't sure what it is. Had every test available. Doctors don't think it is pudendal but haven't given me alternate diagnosis. Came on after anal fissure which healed. I am sat here alone tonight, my family ...