Health Organization for Pudendal Education

Hi Violet and Des, Violet, it's great to hear about some consistent success stories, I'm sure we will all get there eventually and hopefully we will all have made the path for those who are yet to come a shorter one to travel. One of the things that I will never understand about this stupid conditio...

Hi there DES, I have had my PGAD for 6 years 9 months during that time I have had 3 colonoscopys and they never made my symptons any worse (or better, of course) these were done just as a usual bi-annual check as there had been a history in my family of bowel cancer (mine have always been clear) and...

Hello friends, Mandymand ... Buses, most cars and TRAINS !!!! Interesting though that my partner has a Subaru and I have no problem with that at all. My physiotherapist said quite a while ago that the Subaru seats have a shape that takes the pressure off the pudendal so I have adjusted my car seat t...

Hi Cari, Thanks for the comments on my avatar, I think all of us with PGAD can relate to that !!! I am going to stop the Lignocaine for a couple of days soon just to check whether it's the gel or the block that is giving me some relief but I just want to continue for a few days to let everything set...

Hello people, I went for a follow-up appointment after my nerve block and reported that I wasn't getting any relief though I thought it might be too soon to tell because the 'flare' always takes a while to settle. She gave me Lignocaine gel with the words "try it, it certainly won't have any si...

Hi Kate, I am new to this site as well and totally understand the feelings of hopelessness you have mentioned. I hope that you have read my posts about the Womens Hospital, I'm not cured yet but they have told me that THEY won't give up on finding the answer for me and those words were the best word...

Hi everyone, wow, so many responses !! Helen and Violet ...I go to the 'chronic pelvic pain' unit at the Womens Hospital. I see Dr Angela Ghia (great lady) and physiotherapist Dr Anne-Florence Plante, they also have a counsellor, psychologist and access to any medico within the hospital system. I ha...

Hi Kate,
I'm an Aussie, Melbournian to be exact. I go to a fantastic clinic at the Womens Hospital, if this is within your area just reply to this and I'll give you more details
Marg

Kate, On the HOME page I see a pain doc in East Melbourne and one in Fitzroy Victoria....you do have some resources!!!!!!!!!!!!!!!! yay!!!!!!!!!!! Hi Carolyn, I only found this site tonight and I may not be replying the right way but I hope you get this. I attend the Royal Womens Hospital and all m...

Hi everybody, I have only just been introduced to this site after suffering PGAD for the last 6years and 6 months (yes, I'm counting) I have tried many, many different meds and had quite a few procedures, but still don't have relief. Today is one of my 'bad' days because I had to sit on a train for ...