Health Organization for Pudendal Education

Meet Dr Caroline Pukall in this video clip.
She explains her work and discusses some of the goals for her research on PGAD!

Dr Pukall on the SHRL PGAD Study
https://www.youtube.com/watch?v=uiG8VJH ... e=youtu.be

Hi everyone, In case you missed it, there is an important online survey which is running for women who have symptoms of persistent genital arousal. Please participate, as you will be contributing to meaning research on the disorder; this survey runs until March 2016. http://pgad.sexlab.ca/ There is ...

Please take the time to look at this video clip made by Robyn Jackowich, one of the researchers, to explain the purpose of this study:

https://www.youtube.com/watch?v=mNDuaq8 ... e=youtu.be

Hi Shaela, I know one woman who went to physical therapy for a few months for PGAD and she has been symptom-free for 2 years. She never consulted a doctor about her condition as she lived in a very small town. Also Stephanie Prendergast and Elizabeth Rummer, two top PTs in the US who treat all kinds...

Wonderful news Nesssieee!
Glad that you got a few weeks off! Can you identify what you did to stay well for 4 weeks?
Keep up the progress, even if you get a flare now and then.

Hi Shaela, Pelvic floor physical therapy was very useful to me, but it was done while I was on Lyrica. The PT got better results when I was on medication because my nervous system wasn't as revved up. I still do about 1 hour of home physiotherapy exercises everyday to make sure I maintain my progres...

Sorry that you have had some discouraging times. It is extremely difficult to be aware of triggers all the time, and sometimes none can be identified so we don't know what might have caused a flare... I hear you. But, I think your doctor did have important advice, your age does help you recover fast...

Q. Why are men not mentioned anywhere in the online survey first page?.... everything seems to be directed at women, when there are several men with PGAD as well? Dr. Pukall: We plan to study men with PGAD in the next online study that will likely start in the fall of 2016. We are looking forward t...

Dr. Caroline Pukall has been receiving various questions from women who want to participate in the Survey. She agreed to share these questions and her replies with groups on forums or social media who had been invited to participate. Q: What do you hope to accomplish with this study? Dr. Pukall: The...

An MRI of the sacrum can show if there are Tarlov cysts pressing against nerves in that area. An MRN (magnetic resonance neurography) of the pelvis can show if the pudendal nerve has scarring. Both of these conditions can contribute to pgad symptoms.