Health Organization for Pudendal Education

Rita, Sorry to hear you were hurting this weekend but it sounds like you had fun nonetheless! I hope your appt went well today. I had a setback yesterday and am still feeling pretty rotten today. I am looking forward to seeing Beth next week to talk things over with her. 1 hour for a PT appt is real...

Jim/Rita, I'm glad to hear you are both doing so much better. Wow if I could ever run again it would be a miracle! Or do any strength training or conditioning for that matter. I used to do marathons as well as weights and I miss it like crazy. I also have been feeling quite a bit better after my sec...

Thanks, Faith. It's worth a shot for me to see if she has any other comments in general. At least I know she has done this before and knows what to look for. The read I currently have is very vague.

MNMom

Last week I had a 3-T MRI done on my pelvis at CDI Radiology in St Louis Park, MN. I had called in advance to let them know Dr Potter's office would be sending them instructions on how to read the image using her protocol. To my surprise they already were familiar with the protocol and said they wou...

Rita, Is there a reason you want to avoid the injections? For me, even though they're not providing any long term relief, they confirm that the pudendal nerve is the main instigator ofy pain. Whether it is neuralgia or entrapment I can't be sure but at least I have a diagnosis and maybe a small redu...

Rita, My symptoms sound very much like yours - I have no rectal, bladder or vaginal issues. I thought my problem was purely musculoskeletal b/c it started and was aggravated from running. This is why I've gone from orthopedic to orthopedic and not to an OB/GYN or urologist. The hip PT, which is glut...

Rita, I would love to hear what progress you make. Please let me know. Also curious as to why she didn't think you had PN? Has she had other patients with your symptoms that have been cured by PT? I have switched PTs now to go to Edina and see Irene at MAPS. We'll see how that goes. The last pelvic ...

Another piece of info for Rita/Jim or anyone in the Minneapolis area -

CDI imaging in St Louis Park has the 3-T MRI. They also already have the information from Dr Potter on her imaging protocol for PNE. This made everything so much easier for me.

Rita/Jim, I had called Beth to see if she could recommend any other PTs in the area who can treat Pudendal Neuralgia patients She game me these names Edina - Irene at MAPS 763 537 6000 Edina - Marie Holecek 952 924 0199 Burnsville Jill Lawrence 952 892 6777 Forest Lake Tammy Casperwoods 651 464 8502...

Rita,
I am curious who referred you to Dr Antolak? I was referred by another physician in the same clinic.
I hope the self care plan works for you, unfortunately I think I'm beyond that.
MNMom