Health Organization for Pudendal Education

I was just diagnosed through Potter MRI with Pelvic Varices (Pelvic Floor Congestion Syndrom). I also have some PNE symptoms that are not explained by Pelvic Varices. Does anyone who has posted in this section have any updates? I find the case study listed below interesting. It appears that the vari...

I had a potter MRI which doesn't seem to have found PNE but instead something called Pelvic Floor Congestion Syndrome. This is enlarged veins in the pelvis that can cause similiar symptoms to PNE and the veins are next to/near the pudendal nerve. This syndrome explains some of my symptoms but not al...

I have to comment on this because i have wondered the same thing. Isa Herrera (PT mentioned above) is my physical therapist and she told me NOT to do any forward bends/hip flexion as it "stretches" the pudendal nerve and irritates it. I am a yoga teacher and have found that yoga can both h...

I have had symptoms of mild IC off and on for years -- without knowing what it was. When the PNE/vulvadynia hit -- so did IC symptoms -- and really bad. I follow the IC diet and the did the relaxation and stretching that is recommended by PT Amy Stein for IC -- and the symptoms went away. When i had...

I had a huge reduction in symptoms after Physical Therapy for the pelvic floor for about two months, i was still taking 10mg of Elavil, but basically was symptom free as long as i didnt do anything to aggravate it. Then, a couple of days ago -- it came back, only mildly. I am going to see Sheldon Jo...

I'm not sure exactly how i got this. I fell straddle on a jungle gym when i was five but i had no serious injury at the time. I have done a lot of yoga and had a "hamstring injury" at the sitting bone where my sitting bone throbbed for years on on and off. After sitting and working at a de...

HI: I am new to this site and am pretty sure that i have PNE. I am going to a vulvar pain specialist, but I'm not sure she knows what she is doing. I have requested a Nerve block but she was reluctant to give one. She doesn't follow the protocol listed on this site and only does a hand-guided intra-...