Search found 72 matches
- Sat Dec 15, 2012 10:15 pm
- Forum: ASSOCIATED DISORDERS
- Topic: Atypical Trigeminal Neuralgia
- Replies: 17
- Views: 3549
Re: Atypical Trigeminal Neuralgia
Hi calls a My mum suffered with try germinal neuralgia for many years and as a teenager I saw her suffer for twelve years until my dad ran in one day from work and told her that a fellow sufferer that worked with him had had surjury and had been relived of the pain! She has , apart from a few ghost ...
- Thu Dec 06, 2012 9:36 pm
- Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
- Topic: Memory Foam for sitting or lying?
- Replies: 25
- Views: 11144
Re: Memory Foam for sitting or lying?
Hi I have found memory foam mattress toppers fantastic to sleep on(as long as you have at least three inches depth! But still finding the right cushion for the car ect still eludes me! I find now after many years of trail that give me a firm seat any day than a (squishy) one, as I can cross my legs ...
- Wed Dec 05, 2012 10:27 pm
- Forum: ANNOUNCEMENTS & COMMUNITY
- Topic: A sad day. Brave PGAD sufferer ends her life.
- Replies: 14
- Views: 3178
Re: A sad day. Brave PGAD sufferer ends her life.
Oh dear This is what we don't want to hear! Because we are busy working our way around this condition! Yes I do agree whole heartedly that the physicians that let her down need to know this!! I do a bad haircut(I hope not) and my client will let me know and I will move heaven and earth to make it ri...
- Thu Nov 29, 2012 8:50 pm
- Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
- Topic: Travel
- Replies: 15
- Views: 2287
Re: Travel
Thanks jax We seem to be on similar meds I'm on lyrica and amitriptalene. I have now been on them for several years and I do think they tend to lose there potency a little! But we do have to keep positive I know and I'm sure there is a solution! As for my partners support? Yes so far so good, but wh...
- Mon Nov 26, 2012 9:32 pm
- Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
- Topic: Memory Foam for sitting or lying?
- Replies: 25
- Views: 11144
Re: Memory Foam for sitting or lying?
Hi I cannot speak for sitting on memory foam(although I am now going to consider it!)but a memory foam topper has helped me tremendously! I find laying down as well as sitting painfull, and my four inch(I have found you need that depth at least has helped me tremendously!. As for cushions, well I ha...
- Wed Nov 21, 2012 9:20 pm
- Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
- Topic: Travel
- Replies: 15
- Views: 2287
Re: Travel
Hi violet Thank you so much for your reply! You have mentioned a couple of meds I haven't tried! At the moment I'm on pegabalin 150mg a day amitriptalene 50mg. I think that because I want to funtion like my partner and have that(ok I'm on holiday) gin and tonic, I trade extra medication to do it!(wr...
- Tue Nov 20, 2012 6:31 pm
- Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
- Topic: Travel
- Replies: 15
- Views: 2287
Re: Travel
Thanks calluna I am lucky calls a that I have vague problems in my girlie bits, some time bait of numbness , sometimes a little burning! My pain is of the more rectal kind! Deep gnawing aching and worst off all the deep burning like having(excuse the detail) armed hot sword inside you! This pain typ...
- Tue Nov 20, 2012 12:16 pm
- Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
- Topic: Travel
- Replies: 15
- Views: 2287
Travel
Hi! Just want to share your feelings on travel! Over the last twelve years of suffering with pn I have continued to work and(play) with the help of a few restrictions and a lot of meds, but my last holiday( sharm el shake) from my local air port(five ish hours) has been a disappointing trial ! I hav...
- Sat Sep 29, 2012 12:51 pm
- Forum: ANNOUNCEMENTS & COMMUNITY
- Topic: Alcock canal injections
- Replies: 1
- Views: 871
Alcock canal injections
Hi Just got back from London after having my two bilateral injections into the Alcock cannal! I did trawl threw what has been others experiances, but found there was not a good deal written(certainly nothing to make me run and beg for it) but what the heck, take in a show, " blood brothers"...
- Fri Sep 14, 2012 9:49 pm
- Forum: WELCOME CENTER
- Topic: Newbie
- Replies: 60
- Views: 6241
Re: Newbie
Joyh All though you will not be feeling much of that at the moment !!we so feel your frustration. You have found the right site whatever your droughts and had the best advice! I have been of the radar for the last few days as I have engaged in a little pleasure? Yes it is possible. After a very bad ...