Health Organization for Pudendal Education

Hi Helen Had panic a while back(thought you were going to leave us) I am involved with support with ostomys sufferers! Many kindly say that my to hell with it atitude(not always in private) makes a difference ?? Well when I first found this site, along with the "other girls" you made a dif...

Hi! I do hope you take Helen's advise and don't go to a neurologist or you will end up in a cycle of miss understanding! Also don't expect your chosen p.n.e specialist to just be able to push a button and relive your pain! But it will be the first step of the way to gain tools(the correct meds) and ...

Thanks for your reply Helen. Yes asking a pharmacist would be a good idea! What I have done also is make an opointment to see my doctor next week to have a chat as she has taken over from my old doctor who has retired and although she is p.n.e aware(she says I'm her first)!!!! Aren't I the lucky one...

The last four months have been challenging! Just finished house extension, done alsorts of things I shouldn't!! Painted a room(didn't dare tell decorator I didn't like it) I'm a wimp? Partner said I'd have to live with it( no chance) so I did it, with all the bending and reaching I haven't done for ...

Light mail
I'm sure you know your body , and also your personal history! And I respect that! But if you ever want to know my findings(collected over the last few years) I will be only to happy to share with you) my best wishes
Annevsmith

Hi cph I have had an iliostomys now for thirty three years now and after the first twenty one years past nicely I started with p.n.e It took me ten years to get my diagnosis! (all I came across was ignorance ) and throughout this period noticed that other people with iliostomys were writing letters ...

Hi stratts Intereasting to read your own and all the caring replays. I like many more of us have found the life changes limiting! As yes they are ! I still manage to hairdress from eleven thirty till five, but I'm tiered and ready for home! House hold chores are not to bad if I avoid bending! As for...

P g a d I am lucky enough ( at the moment) not to suffer from that particular symptom , but as I read with intereast advise offered by the other girls, lidocaine has been mentioned and it made me think of a wonderfull cream I have discovered for feminine itching in "the girlie bits" someth...

Burning feet Yes these pains do keep morphing??? I not long ago had burning hands in the night( I wondered if it was changing one of my drugs) but I'm glad to say it did settle. Just for your intereast I also get rhythmic throbbing in my shins, but only when my sciatica is bad. I have spent the week...

Oh Julia! I wish I could hug you ! I'm sure we all could. All you are feeling we all have! My partner loves me, but has never read a page about my problem! Yes he to grieve s the life we should have and now haven't! I would love to see my son in Dubai ! But I cannot cope with the commute from my hom...