Health Organization for Pudendal Education

Hi I agree with your whole list including being unable to work. Close family and a few close friends are great and interested in the condition. The rest get on with their own lives, not interested or oblivious to the misery and disability of chronic pain. I try to educate folk but most people aren't...

Hi Helen Sounds like you have had a difficult time of things. I to am under Dr G, having my 2nd injection under CT guidance at Southmead Hospital Bristol on the 23rd April. I paid privately to see Dr G at St Mary's Bristol and had US guided inj in clinic in March. Plan was 3 inj +/- decompression su...

:cry: Hi everyone Just wondering if anyone knows typically how long after having PN block a steroid flare generally occurs? Had Ultrasound guided block with nerve stimulation 2weeks ago by Dr Greenslade, CT guided x 2 planned at 6 and 12 weeks. Immediate complete relief for about 7 hrs, 3 days later...

Thanks Calluna I will try, my GP is supportive but I know there has been a recent clampdown on applications. The last time he answered duration more than 12 months they bounced it back! As you say they are only for 3 years anyhow and I could return it should things improve. Just got my seatbelt exem...

Hi everyone My pudendal pain started 12m ago at the same time I developed rectal bleeding and diarrhoea. Eventually I was diagnosed with an inflammed rectum (proctitis likely Ulcerative Colitis) The proctitis was treated with Asacol tablets, it took about 6 months to control the inflammation. Howeve...

Hi Birdlife Funny you noticed the number of people who ask how your back is, they just don't get it! LOL! I bet others many others face the same comments! Another one I love is 'your looking really well!' either intimating the pain is all psychological or just genuinely trying to cheer me up, diffic...

Hi everyone I have had worsening mobility for 3-4 months, somedays I can walk 5-10 mins, but slowly and in a great deal of pain. Waiting for CT guided injection. How many of you have a blue badge? My GP will support my application however sticking point is question ' is your condition permenant?' No...

Thanks Birdlife and Violet I will look into the TP massage, as you say muscles will tighten if not used. I keep pushing everyday, can't afford to give up. Is it just me who finds other people's lack of understanding frustrating? Work colleagues, though well meaning suggesting we all go out for a mea...

Hi everyone New member here, learning lots about my condition, especially from the forums so thanks. Do any of the more experienced sufferers know if there are any symptoms more suggestive of PNE as opposed to PN? Had PN for 12 months now. Noticed symptoms have progressed considerbly despite lifesty...

Thanks everyone for your advice and empathy. Janetm2 - 12+ months is a good time frame for me to have in mind, thanks. I bet retirement can't come soon enough! Violet M - any particular chair you use / chairs you know of? Bird life - will try ice, where did you find out how to perform trigger point ...