Health Organization for Pudendal Education

Thank you so much for your replies - sorry it took a few days for me to answer, haven't been able to get in a comfy position on the laptop. I can read this site OK on my android phone (Galaxy s2), but it's very hard to post. First of all, if it were not for this site I would not even know about SIJ ...

remove! for some reason the "delete post" x button is not on the top right of this post....

Hi, I know this issue has come up quite a few times, however I cannot find anything that seems similar to mine when searching. I had a look at the official pelvic CT results (it was actually a detailed CT of the coccyx area). One of the top spine doctors/surgeons, along with other doctors who read t...

Thank you Violet.

Hi, I see this thead is from a few months ago, but maybe someone is still out there! I had a doctor tell me he would not do a CT guided block because it gives off an incredible amount of radiation, equal to about 500 x rays. Has anybody heard of this before? This doctor did give me a block in anothe...

Hi again, This is my last post/question, promise. You all have been so helpful. :-) 1 ) Something amazing happened yesterday and today - the pain has gone from a 10+++ (even look at my first desperate email written on Friday) to a 4 -5 or so. After nearly four months of being paralyzed by horrific p...

With regard to meds - I know you have already said that you've tried everything, but your doctors seem to be focussing on opiates, which really are not first line or even second line treatment for neuropathic pain. Here is a link to a UK guide - have your doctors run through all this? I expect they...

Hi, Can you please share with me what type of suppositories have worked best for you, rectum (for those horrible knives, pain and pressure), and vaginal (for lightning bolts, sensitivity and pain). I know I have seen people talk about suppositories, usually with some sort of benzo (valium for exampl...

But I think you need more info before deciding on a PN diagnosis. There are other things that can cause similar symptoms and it sounds like you haven't had a PN block yet or a proper exam from someone experienced with the disease. Did you see my reply to birdlife? Is it common to get diagnosis by s...

Len, sorry to hear of your bad situation. I have found little relief in pain killers. Can't tolerate morphine or fentanyl at all (allergic). Hydromorphone (Dilaudid) helps a little. Demeral makes me sooo stoned. As an immediate solution, see if you can get a drug called sodium oxybate. It is the on...