Search found 33 matches

by JODDY
Sun Dec 16, 2012 12:43 am
Forum: WELCOME CENTER
Topic: Physical therapy does it work
Replies: 24
Views: 5064

Re: Physical therapy does it work

If its the proper kind of physical therapy, and if you stick to it and don't expect to be instantly cured than yes, it will likely work... I disagree. I had more than 100 sessions of PT including many sessions with Tim Sawyer, the Stanford Protocol PT. It never cured me. Yes, I was better for a few...
by JODDY
Thu Dec 13, 2012 8:31 pm
Forum: SURGERY
Topic: PN Surgery?!
Replies: 36
Views: 12749

Re: PN Surgery?!

We have only 1 patient who reports an 80% improvement over on the fb site. Please be sure you know where you are entrapped and that you are having the correct procedure done for that area. Surgery in my mind should not be considered unless you are ready to jump off the bridge. We just do not see gr...
by JODDY
Thu Dec 13, 2012 8:09 pm
Forum: WELCOME CENTER
Topic: Physical therapy does it work
Replies: 24
Views: 5064

Re: Physical therapy does it work

Physical therapy, does it work? It didn't work for me.I have had rectal spasms(aka Levator Spasms)for 20 years and I haven't found anything that would work. Since nothing has worked, it must be PNE. From what I have read on this forum and another forums ,PNE surgery has not helped either. Some peopl...
by JODDY
Fri May 18, 2012 3:32 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: What causes Pudendal Nerve Entrapment?
Replies: 2
Views: 2381

What causes Pudendal Nerve Entrapment?

I have had Levator Spasms of the rectal muscles for 20 years. I also have burning before and after urinating. I have seen a urologist and he said I had no infection. I have heard that Pudendal Nerve Entrapment can cause these spasms and urinary problems.I heard that weight lifting, biking(long dista...
by JODDY
Mon Apr 23, 2012 1:41 am
Forum: SURGERY
Topic: Pain Management Or Surgery
Replies: 8
Views: 2985

Re: Pain Management Or Surgery

Hi carolynm, I agree with you about this problem being financially devastating. I have spent a lot of money in the last 20 years. I am now on medicare with a supplement and that helps a little, but some Doctors like Dr Dellon do not take medicare.Like I said, I am going to give pain management a try...
by JODDY
Tue Apr 17, 2012 9:50 pm
Forum: SURGERY
Topic: Pain Management Or Surgery
Replies: 8
Views: 2985

Re: Pain Management Or Surgery

Hi janetm2, EGS and physical therapy did not help me.Since the physical therapy didn't help,the physical therapist said I probably have Pudendal Nerve Entrapment.I have tried everything except botox and pain mangement. I have been told that PNE causes Levator Spasms.If the botox or pain mangement do...
by JODDY
Mon Apr 16, 2012 2:19 am
Forum: SURGERY
Topic: Pain Management Or Surgery
Replies: 8
Views: 2985

Pain Management Or Surgery

I am looking into pain mangement. I have had Levator Spasms(orPNE) for the last 20 years. Levator Spasms are spasms of the rectal muscles.I have read some posts about how PNE surgery has helped some people, and for some it has made them worse.There is always a chance that the PNE surgery could make ...
by JODDY
Fri Mar 30, 2012 4:32 am
Forum: SURGERY
Topic: Successful surgery for "Amy47" in Houston with Dr. Ansell
Replies: 3
Views: 2140

Re: Successful surgery for "Amy47" in Houston with Dr. Ansel

I am glad to hear that Amys surgery was successful.
by JODDY
Tue Mar 20, 2012 12:41 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Has anyone had symptoms go away for months only to reoccur?
Replies: 8
Views: 3830

Re: Has anyone had symptoms go away for months only to reocc

I have rectal spasms(Levator Spasms) that are caused by PNE. From April to July of 2010 my pain level went from 6 or 7 down to 1 or 2. I really thought these spasms were going away,but in September the pain level went back up to 6 or 7.
by JODDY
Sat Jan 21, 2012 6:22 am
Forum: SURGERY
Topic: Dr Dellon
Replies: 169
Views: 50060

Re: Dr Dellon

Ali, I was thinking about seeing DR.Aszmann,but since you said your surgery was a failure, I think I will hold off seeing any PNE doctor. I have Levator Spasms and sometimes it bothers me a lot and other times it will ease off a little. I couldn't imagine this problem being any worse than it is. I m...

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