Health Organization for Pudendal Education

I don't think it is a strange thing to post here at all. It took me about a year and a half to get diagnosed with my labral tear after having itchy/painful PN symptoms. I think more research needs to be done between the hip/PN and SIJD/PN connections so that we can better figure out who hip surgery ...

Hey Antonia, As Janet said, the labral tear is definitely fixable! I had my labral tear surgery about a year ago and my PN is pretty much completely under control now, thank God. I've never been diagnosed with a hamstring tear, but I have been diagnosed with some hamstring strain causing sit bone pa...

Duloxetine is cymbalta, right? When I first tried Cymbalta I had to break open the smallest dose capsules and split the little pellets inside into two groups and just take half so that I wouldn't be dizzy and nauseous. Eventually I worked my way up. You can't take it with tramadol though, or it will...

Yay! So exciting! Thanks for all your hard work.

Mary Jane, Please do not give up hope of all those things! I am also 26 years old. When I first started with PN 2.5 years ago, I though all those things you listed were lost to me as well. In fact, my fiancé did break up with me because I could not have sex and was always in pain. After reading abou...

Good to know, thanks! I have been taking 300mg of Lyrica daily for 1.5 years and I always wonder when/if I will stop taking it. I don't really mind it, but this gives me hope that one day I might stop it altogether. Very cool.

Hi, I'm sorry you are going through this and I just want to throw in my two cents because I have navigated the NYC area providers. Definitely get a 3T MRI with Dr. Potter. HSS was actually not in network for me, but they have an amazing financial aid plan, so I paid very little for my scans in the e...

I don't have a penis and I rarely drink, but maybe your symptoms are better with alcohol because it is a nervous system depressant? Would it work similarly to a drug like Lyrica that calms down your nervous system? Maybe you could look into that if you haven't already. I agree that alcoholism isn't ...

I love the newsletter on the front page. Is anyone working on a new edition of it? I might be able to help. Thanks!

Beverley, I'm so glad you are out of your flare! I take Lyrica too, and while I know you wanted to get off drugs completely since your surgery, I'm glad it's helping. Keep us posted on your PT progress.

Hugs,
Jackie