Health Organization for Pudendal Education

Dr Jordan uses Decadron instead of cortisone since its water soluable and does not crystalize. This could be an option.

Merrie

Dr Sheldon Jordan does botox to the psoas muscle for those who are interested.

Merrie

Brian -

Some people were recently talking about a Dr named Jason Attaman in washington. I don't know anything about him but he could be a local resource for you. Maybe search this site or google him and see what you find.

Good Luck!
Merrie

I had seen Dr Rapkin approximately 4-5 times in 2009-2010 timeframe. I have adenomyosis, issues with heavy bleeding/clotting as well as PNE. I agree she does not have the best bedside manner. She is known more for her research. She is VERY clinical. In the end she was not able to help me and her las...

This is so interesting as I also struggle with constipation made worse by meds and PNE. Where did you have the biofeedback done?

Merrie

I usually go with the simple " I have a nerve entrapped in my pelvis - which causes me widespread neuropathic pain - and makes it impossible for me to sit comfortably." I agree saying back pain elicits unwanted war stories from people about back treatments (which drives me insane). Hope yo...

NYT-

Can you tell us more about the clitoral block and the clitoral vein scleritization procedures? I am very interested in both.

Thanks -

Merrie

wow looks very interesting!

Does anyone know of a good PNE and pelvic pain aware gynecologist in the Los Angeles area? My current ob/gyn is just clueless. I am under the care of Dr Jordan for my PNE, but I need to find a good gynecologist to help me with my other pelvic pain problems. I have seen Dr Rapkin at UCLA and she was ...

All I know is that these meds cannot come fast enough for me. I pray for the day that there is an effective medicine for those of us that suffer so horribly with nerve pain and crps.

Merrie