Health Organization for Pudendal Education

I working on my list of activities (both work and home) that I cannot perform due to this dreaded monster in preparation for potentially filings for disability. For those of you who have gotten disability, what types of things did you identify other than the obvious I cannot sit or stand without sev...

Hello all- Looking to hear some experiences from anyone who came off long term opiate treatment. I believe I have developed opioid induced hyperalgesia after speaking with several doctors/professionals and Im going to be speaking with my pain management doctor again tomorrow about starting a taperin...

I got this and was not impressed. If anything it caused more tension on my poor pudendal nerve.

Good luck.

Merrie

Grace this looks amazing. How much does something like the first item cost?

Merrie

The insurance company has a whole list of treatments that one must have failed before they qualify (ie failed 2 courses of antidepressants, being treated by psychiatrist, other things). I am working on trying to figure this all out since I clearly have developed depression/PTSD from this illness lik...

I was quoted a price of $13,000 for initial treatment with annual boosters required in the $3-4,000 range. THis is before insurance. As of now many insurance with cover this treatment for depression but not chronic pain.

Don-

After reading your story, I decided I am going to arrange a consult with Dr Shernin Towfigh. She is a hernia specialist who I read about and she is right in my area at Cedars Siani here is Los Angeles.

Please keep us posted on your surgical consult!

Merrie

I am currently looking into rTMS as an option. I am starting to research to see what I can find on the topic.

http://www.smartbrainandhealth.com/chronicpain.html

Emily-

I live in the LA area. My understanding is this group works more with IC / prolapse patients. But Dr Hall is very respected and in my opinion it wouldn't hurt to have a consult with them. I am re-considering the same after seeing your post.

Best-
Merrie

Greg - For these people who are getting better from PNE surgery, who are they having surgery with? I am one of those patients who are afraid of surgery because of all the negative outcomes I read/hear about. My doctor also believes that the surgical risks are far too great to risk the surgery. Thank...