Health Organization for Pudendal Education

Hi Bunny, So sorry you have this debilitating condition. Dr B. five years ago was charging &450 per hour, I have no idea how long his waiting list is, or how much he is currently charging. He did have a very good secretary back then who if still there would be able to givd hou up to date details...

Hi Andrea, I know Dr Greenslade is away most of this month that does,nt help you, but at least you knoe thats why he is even hardedpr tl get hold of. Which local pain consultant are you going to see? I don,t really know what else to say as regards you,re increased levels of pain. Have you tried gent...

Still battling for my medication,nobody seems to want to take responsibility. I have heard that the macmillan centre at Frenchay has a different tenency agreement to the rest of the hospital so might remain put, be it it will be surrounded by up market housing. I don,t know if this will happen but a...

Thanks ladies, I,ve had to contact Frenchay,leave a message for Dr G via secretary and pain clinic nurses, they were extremely helpful, Dr G won,t be back until next week, so I had to reauest multiple prescriptions until such time that my surgery will take it over, what a palava! I too hope Helen is...

I also saw Dr G. last week, who told me that pn surgery has still not resumed under the nhs, he did not elaborate. This is now 18 months since it was last performed a very long time and certainly not good news for uk patients. He prescribed me two new drugs one being pregabilin. My surgery refuses t...

Hi Ray, I don,t know anyone who has been fitted with a stimulator but I know that Dr B. has done them for people with pn. You could ask him if he would be able to put you in touch with somebody who has been through this via London, the specialist nurse would probably be the best person to connact. A...

Hi Selbourne,

I to have had golf ball in the rectum symptoms, I do not own a prostate any ideas?

According the the Headache in the pelvis book these symptoms are thought to be due to one of the pelvic muscle groups in spasm. Have,nt got the book in front of me so can,t quote which ones.

Molly

Sorry about that. I was going to say until pain gets easier.


Its a long hard road and you do have to be pr active in your management.


Hope this is helpful.


Regards Molly

Hi Lex, I am also in the UK and had surgery last year in Turkey. I suppose I started to see a very small improvement at around six th eight months. I am now fourteen months post op and thanks to some physio of my hip muscles which has made a huge difference I can now get up to 50 % on some not all d...

David, I forgot to mention but to he best of my knowedge both Dr G and Dr B would refer you on to Nantes if you needed to go down the surgical route. If you wanted to go directly to Nantes, Judy from the british pelvic pain website is the one who has the contacts, Helen I,m sure would point you in t...