Health Organization for Pudendal Education

Hi Sunil,

I have asked my physio to look at thr Peter Dorman stuff with regard to new SIJ clinic, have,nt got a response yet. I am seeing her next week so I,ll let you know.I think we all agree many brains across many continents need to share and build on their expertise.

Regards

Molly

Hi Anne, We went to Sharm at the beginning of December, was really nervous as it was my first trip since surgery We like Helen purchased extra leg room only 30 pounds extra each, each way, it was a godsend as the flight was not full also had an extra seat between us, made the journey very manageble....

Hi James, There is a pn aware physio in London called Maria Elliot, I,m not sure she treats men but you could ring her and if she does,nt she will be able to put you in touch with somebody who does. She is very experienced and from what I,ve heard very hands on. If you goggle her you will get her co...

Hi Rayflight, From my experience at the national some years ago Iwould reccommend you contact Dr B.s specialist nurse. She should be able to answer you,re questions. If you do not have contact details let me know Imay still have her details assuming its the same person, I can pm them to you. Kind re...

Hi Sunil,

I did read whs you wrote, and did intend to forwards Peter Dorman,s article to my physio along with Manchester link, thinking as she is vefy well known and respected this would be a good move. If this is not what you intended ,let me know.

Molly

I will pass on these links to my pelvic physio who is well regarded amonst pelvic pain professionals in the UK and see if she may be prepared to go forward with contacting Manchester.

Regards Molly

Hi Calluna, So sorry you,re having to deal with another ghastly condition, life is so unfair. There is a theory that certain conditions hunt in packs, not much consolation I know. From my time at the nati9nal heurology hospital, Ido remember there being a whole team dedicated to face and head pain, ...

Hi Isobel,, I have been seen by blth the london team and Df Greenslade. Personally Ifound Dr Greenslade a lot more patient focused ans empathetic than the london team, he is also a lot cheaper to see privately. Dr Greenslade does do diagnosgic nerve blocks and used to refer some people onto london, ...

Hi Christian, I,m also from the UK and have found this an incredibly difficult journey. I,m fron the south west and have all conventional treatments and finally surgery earlier this year. I think its fair to say there is no cure for most people , but there are varoius treatments which work for diffe...

Hi Ali, I also have had a lot of numbness following my surgery, and loss of sensation, in my pelvic area. I was told this could take up to six months, and it has indeed resolved. I am now really beginning to feel the benefits of my surgery, but patience and realistic expectations are the key words h...