Health Organization for Pudendal Education

Thank you for replying to my posts. I had bilateral surgery and my right nerve was really badly trapped my left nerve was badly engorged/choked by varicose veins but my doctor didn't have to destroy any nerves which I believe they normally do. The pain is not in a new place it is just more intense a...

Hi everyone, I have had pudendal nerve entrapment surgery on both sides of my bottom just over two weeks ago, and since I have suffered tremendous pain in my mons pubis and my clitoris. I find that I cannot sit for very long at all before getting electric shock type pain on the surgery site. This pa...

Hi Andrea, I have just had surgery at Bristol Spire too last week in fact. I get the awful PGAD which has been and still is horrendous. I take movecol to help my bm and I get them from the doctors. I still can't sit but a week out I know I'm expecting too much. If I could just get rid of this PGAD i...

Hi, I get this PGAD everyday and I am at my wits end. I have recently had bilateral pudendal surgery a wheel ago and wondered when is can expect some relief. I have only just today told my partner, and he was shocked at what I have had to put up with. :( I've also been told that Botox can help. Can ...

Hi Everyone, I am about to undergo the surgery route at Bristol. I have had this two years and diagnosed myself after six specialists couldn't figure it out. It has been diagnosed now and I am trying to get funding. Has anyone of you British got funding? I too want to know about after the operation....

Hi, I too am in the UK and have just had an appointment made to see Doctor Wong in Bristol late June. I am beside my self with pain. I hope everything goes well. Cheers Shirley

Hi,

I have just joined the group and have swollen Mon Pubis and so much pain I feel that my whole 'lady garden' is in a vice. Any suggestions would help at all. Ice packs do ease for a time and hot baths are not good.

Kind regards Shirley

Hi Calluna, I too am from the UK, and I too have PGAD which I find terribly hard to deal with. I felt quite unable to cope and visited my doctor who is hoping for me to see Christopher Wong, but as the operation is not on the NHS I'mnot sure what will happen. I know i AM AT MY WITS END with this and...

Hi Violet, I have just started having injections into the Pudendal nerve, but am in so much pain although there was a brief window of painlessness (5 mins) but I am due to have another one soon on either side. My pain is realy bad and wa made worse when I had a colonoscopy. I want to go through surg...