Health Organization for Pudendal Education

Hi, can anyone share a name or link for a pudendal friendly office chair. Work long hrs largely in front of pc. Tried standing all day but not great or prob healthy in one spot. Someone put pic on here of ergo standing/kneeling chair without link where can buy. Any names gratefully received. Chris

Hi, hope you can help. Recently diagnosed with pudendal prob although not totally convinced, same doctor said not few months ago. Got a few questions I would really appreciate if someone can answer: - have been pencilled in for nerve block, signed disclaimer but later noticed risks were 'could make ...

Hi Helen, thanks for quick Response. My experience with botox sounds remarkably like yours. About 40 percent improvement now pain coming back with vengeance. I had in pubo & levitator muscles with massive dose of 1000 units. Do you take much med? Before procedure was in email contact with doc in...

Hi, Thanks for response. Yes Dr Greenslade & Mr Dixon carried out Botox in Bristol. Was hoping as i had some improvement it would rule out Pudendal. Seen Mr Wong prev who thought it was Pudendal but Greenslade didnt so feel no further fwd. Just always in pain. Seems coincidence that started with...

Hi, two months ago I had botox to pelvic floor muscles which eased pain. Am now feeling pain returning to pre botox level. Have had various opinions as to diagnosis. Some doctors say pudendal some feel not. Does the fact that botox eased pain give indication one way or another. Nearly two years in p...

Thanks violet, will look into what you mention. Chris

Hi Catherine Yes, seen consultant who performed today and he confirmed 1000units (one thousand units). I havent heard of anyone else anywhere getting close to this dose and I read last week that 3000units would be fatal so guess no wonder am struggling. He said he has had great success at this level...

Thanks calluna/lernica Appreciated your input. 17 days on after botox to pelvis incontinence worse but pain has eased a little. Have spells in day when feel completely fatigued. Obviously regret having botox but when a consultant offers hope when you are in pain it is hard to ignore. Just when I fee...

Hi Violet, Many thanks for getting back. Yes its been a long journey, largely fruitless so far in that i have seen 7 consultants with 4 diff diagnosis. Still in lots of pain. Botox to pelvis 10 days ago. Feel wiped out now as well as being in pain and temp incontinent. As you mention had prev sphinc...

Hi calluna, many thanks for your response. Yes I have seen dr greenslade who thought 90 percent certain not pudendal. I had 1000 units of botox to pelvic floor last week with dixon/greenslade. Been in increasing pain since, right now is unbearable. Also left me temp incont so as you can see not in g...