Health Organization for Pudendal Education

Thanks violet, I appreciate your thoughts & sharing your experience. I just can't understand why it was ok for 12 months but maybe I started doing too much. Only a little light upper body straining causes worsening of pain. Cardio workouts/cross trainer work is fine so guess will have to cut out...

Hi, haven't been on here for long while but hoping to get some help. Long term pudendal neuralgia/pelvic floor trigger points sufferer which i now manage by daily pain med. been around 5 years now. around 2 years ago I started using weights and for first year was fine, it started giving me some focu...

Thanks for info Helen. I have had 6 sep botox treatments, 5 to sphincter, the 6th was a massive dose to pelvic floor with only mild relief from pain. My physio has told me that unusually I have ultra tight pelvic floor& sphincter ( my probs started from a fissure) so was thinking only success co...

Many thanks violet, helpful and inciteful as always. I will read hibners article. I was just struggling to understand if entrapment or neuralgia is inevitable if muscle spasm that tight. My limited knowledge of biology tells me if whole pelvic floor is rock solid then surely there has to be entrapme...

Hi, hoping you can help. Clearly I have very tight pelvic floor muscles. Does this confirm or dismiss pn. Does tight pf muscles cause pn or other way around. How many PN sufferers DONT have tight muscles. Just lots of recommendations for physio on here which assume all they can do is work on these t...

Thanks Rosemary, I will check out the ketamine cream you mentioned. If problem is largely muscular does this affect the medication given? Ie would muscle relaxant be better?

Hi Michelle, many thanks for your input which i found helpful. I have never heard of methadone being used as pain med only as heroin substitute. Would a doctor routinely prescribe this if you asked or is it seen as a last chance med? I find it impossible to get pelvic & sphincter muscles to rela...

Hi, am pretty fed up with this pain, day in day out it's miserable soul destroying pain. Have been positive, stubborn, told have high tolerance to pain, tried all avenues, over a dozen consultants, surgery, botox, flew around Europe visiting the best physios around. Yet still I suffer. When is enoug...

Hello, am hoping someone might be able to give any insight into what am going through. Feeling isolated with it all. 4 years after developing fissure, fissure healed but pain remains. Each day is bad. Today is excruciationg. Flew to see pn aware physio last week. Like everyone else have seen says no...

Many thanks, been seeing maeve whelan in Ireland but means flight and time off work.