Health Organization for Pudendal Education

Hi admir87, I had bilateral pudendal nerve release on 30 May 2014. Dr Loeffler performed the surgery with Prof Thierry Vancaille (pudendal nerve specialist in Sydney) assisting. Dr Loeffler is an orthopaedic spinal surgeon and knows his way very well around all things spinal and Prof Vancaillie incl...

Oh dear Violet, I just wrote a huge post and was interrupted by a phone call. When I resumed and completed my post it was lost as I had been timed out :o I hardly have the energy to repost and will give you more detail in the coming days when I calm down lol! I've got the 3 week post op blues, no pr...

I'm bilateral Lara but your advice is just what I'm looking for. When you said "when you start doing stairs", I haven't a clue when I'm supposed to do that. It will be on my list of questions when I see my physio (who's fabulous by the way) and she will answer all of them and tell me what ...

Lara thankyou for that wonderful advice. I will use that to keep myself in check. Feeling good and doing the wrong thing would be awful. Gliding exercise I was told was either lying or even standing bring one leg up slowly to a 90 degree angle, hold one second and recline. Then do other leg. I don't...

Thanks nyt for advice. I note that you've already been down that track. How're you progressing? I think I'll follow that simple advice, I'm really looking forward to my physio apt to give me more info moving forward. I'm very pleased I took the surgery step after giving it my best with lifestyle and...

Hi all, just had bilateral pudendal nerve decompression on 30 May 2014, so am 2 & half weeks out. I've left all my signature info for referance so in short instead of surgery approx 12 months ago I opted for lifestyle changes and medication. It took time but the pain slowly subsided to a point w...

Thanks PP, I'm glad you're on the 'other side' of your operation now and on your way to a great recovery I'm sure. Just about every post I've read indicates recovery is slow. I think my stumbling block initially to surgery was the recommendation to have a spinal cord stimulator implant. I had an ini...

Hi everyone, I've never strayed far from this site as I've been busy sitting on the fence and watching - surgery versus conservative measures. I was one of those candidates that Prof Vancaille offered bilateral TG back in early 2013 but with spinal cord stimulater also. I started medication too and ...

I'll look into your recommended diet and breathing methods Leilaa - any information on the subject is good. It's then up to the sufferer to chart their own direction. Our cases are all so complex and so different but I've opted for conservative measures, I think I'll regret it if I don't. I think wa...

Hi Violet, yes you're right about just walking. I feel I am improving. I'm seeing a PNE specialist and decided to give myself the opportunity to heal before considering surgery. I'm having small gains and two specialists I've seen which gave neuropathic diagnoses' indicated healing periods of two to...