Health Organization for Pudendal Education

Hi Jackie,

If you have not already done so, you should see a neurologist and make sure that you do not have MS. MS can cause the buzzing sensations that you describe, as well as pelvice pain. Just a thought...

Wishing you less pain hour by hour.

Lois

Yes, I have MS as well. It is hard to figure out what to blame for what here. Most of my doctors don't think it is my MS causing my PN symptoms, but I'm just not sure at this point.

I'm glad you're feeling better, Lernica, and that the mystery is solved!

Best wishes,
Lois

Hi Lernica, This really may have nothing to do at all with the opiates. It just doesn't seem to fit for that. It may be that you need to have some stool cultures done to see if there is an infectious cause to your nausea and diarrhea. It really might be worth seeing your family doc and not waiting t...

Hi Cora,
I'm glad that you are finding additional relief from your pain with the clonidine. Are you using tablets or the patch? And what dose are you on?
Thanks for any information you can provide.
Best wishes for your continued taper off the meds.
Lois

Hi Jami, I sent this as a PM last night but I'm not absolutely sure you received it so I decided to just post it as I don't think it contains anything too controversial. Sometimes members say they have a problem with sending or receiving PMs, so just in case... I like all the others that have writte...

Don, I apologize for the slow response to your questions. Although I'm happy to be reducing my dose on the fentanyl patches that I have been using, I have found the tapering process to be a bit unpleasant! Feeling more myself now--at least until the next dose reduction...ugh. How long did your surge...

Hi Miffy, First if all, you are certainly not a hypochondriac! I am glad that you are getting all your medical records. i think you should go through everything and make a list of your symptoms and when they occurred. The more you tell me about what you have been experiencing, I must say, the more i...

I had pudendal nerve surgery with Dr. Dellon on May 18th and I'm waiting to hear about how much my insurance is going to pay. So far they have payed the whole anesthesia charge! They will most likely pay most of the outpatient site facility charges as well. I doubt that they will pay the full amount...

Linda, I definitely confused you with someone else on fb in the pudendal support group. Interesting in that this person also had surgery with Dr. Dellon at about the same time you did, I think the same day and her story seemed so much the same! Tramadol, etc. Linda, Don makes such a good point, you ...