Health Organization for Pudendal Education

Doreen, Sorry for all the trouble u went thru posting the post-op protocol it actually did post when u scanned it. I really appreciate. I know I'm jumping ahead, I'm good at that, but no heavy lifting for 2 years! Part if my work is brk ging all my equipment with me to each job I attend, every day i...

Wow Doreen what journey!! When I called Hibner's office and found out he won't get on the phone and talk to you befor ur apt I was a bit taken aback. To fly out all the way to AZ w/o knowing if he even can help is crazy to me. Conway seems very nice just soeaking to him on the phone and he has great...

Hi Folks I just wanted to check in regarding the labral tear surgery I had in 2009 with Dr Struan Coleman at HSS in NYC. Dr Coady my pelvic pain gyn at the time, was doing a study in which they found that some womens' vulvar and pelvic pain improved after the surgery. Im sure you are familiar as th...

The last time I tried Valium was back in 2009 so I guess it's worth giving it another try and see how and if I can handle it

Karyn, Thanks for all your help, I truly appreciate it. This medical journey has been a long and hard one (and I'm not done yet!!)With most of my medical providers having no clue how to help me or guide me it's great to have a place like this where total strangers reach out and help and guide one an...

I can ask my PCP, he's been very helpful with my whole ordeal, though he doesn't know anything about PN, he never even heard of it until I enlightened him, he has since researched it and read up about, etc. I will ask him and see what he says though I'm sure he never heard of a Potter MRI so I'm not...

I'm very sensitive to meds, I can't handle any pain meds for example. I've tried Valium in the past, did not react that great to it but maybe I'll try a tiny tiny dose now and this way I'll know how I'll react and then I can decide whether or not to take it before I have my EMG. Thanks for the idea!...

I know this is an old thread but mayb I can get some help. According to what I've ready here it seems everyone is saying the potter MRI can be really helpful. I'm seeing Conway in July my question is should I get a potter MRI bfr I see him? Wld that b helpful with a diagnosis and/or treatment plan. ...

Is interesting because I've had coccyx pain for years before I ever heard of PN yet I never associated it with my pelvic pain I just thought it was another thing. In Sep '12 I started with a new pt and she told me its all connected. Now that I know all abt PN I know that's a common symptom

Shana

Doreen I'm so glad u shared ur success story. I'm relatively knew to this forum but not knew to the pain. I've been in pelvic pain now 5 1/2 years I'm happy u were able to take care of ur pain in 4 years. If only my fr hadn't kept telling me he can fix it I may hv been abl to start my journey toward...