Search found 96 matches

by shana
Sun May 28, 2017 4:51 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Vaginal birth with PN
Replies: 1
Views: 857

Vaginal birth with PN

I'm expecting twins in October, my first pregnancy. I very much would love to have a vaginal delivery. I've suffered with PNE for over 8 years and its actually gotten somewhat worse since getting pregnant. I'm using a high risk MFM group and my doctor is willing to do a vaginal delivery, and even fe...
by shana
Wed Nov 26, 2014 4:15 am
Forum: BOTOX
Topic: Botox with Dr. Marvel?
Replies: 3
Views: 1852

Re: Botox with Dr. Marvel?

I know you posted a while ago..I saw Dr Hibner in June and with the help of the forum and the help of Dr. Hibner and his staff I've been traveling to Rochester, NY to Dr. Carrillo and Dr. Benjamin who trained under Dr. Howard who trained with Dr. Hibner (I know it's confusing) I had my first set of ...
by shana
Wed Nov 26, 2014 4:06 am
Forum: BOTOX
Topic: Botox to coccyxgeus lavator ani and obturator
Replies: 16
Views: 7516

Re: Botox to coccyxgeus lavator ani and obturator

What I didn't realize and I think most people don't realize that Botox is usually administered blindly, meaning the doctor feels for the muscle and injects so it's a hit or miss kind of thing. When I had it done, it was a miss. I'm now scheduled for a CT guided pudendal block to the Alcock's canal a...
by shana
Thu Oct 10, 2013 4:18 am
Forum: WELCOME CENTER
Topic: newbie please help me
Replies: 10
Views: 1183

Re: newbie please help me

Sorry your going through all this. I've been through the ringer and its not fun. I too have coccyx pain and so far that's the only thing I've been able to get relief from. I had what's called a ganglion impar injection which took my pain down to a level of discomfort but I was still able to sit for ...
by shana
Wed Oct 09, 2013 10:55 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Lyrica side effects
Replies: 2
Views: 708

Lyrica side effects

I'm very weary of medications as I tend to be very sensitive to just about everything. My doctor gave me a prescription for Lyrica over a month ago and I've yet to fill it. In researching the side effects online I see that people report worsening mood, extreme suicidal thoughts and attempts, stutter...
by shana
Fri Oct 04, 2013 12:33 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Pulsed radiofrequency nerve ablation dr NY area?
Replies: 14
Views: 2344

Re: Pulsed radiofrequency nerve ablation dr NY area?

I'm having my second one tomorrow, Fri and I'm honestly really looking forward to it. My nerve blocks were disastrous, huge flares that never went back to pre-injection pain level, has been worse ever since. The ganglion impar injectio gave me amazing relief, I was able to sit for hours with just mi...
by shana
Sun Sep 22, 2013 3:15 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Pulsed radiofrequency nerve ablation dr NY area?
Replies: 14
Views: 2344

Re: Pulsed radiofrequency nerve ablation dr NY area?

Dr. Diwan is doing another ganglion impar injection, the first one gave me over 50% relief of my coccyx pain and I was able to tolerate sitting for most of the day (I do have a very, very high pain tolerance) he wants to do another on to see if it gives me relief with my vaginal/anal/perineum, etc. ...
by shana
Sun Sep 22, 2013 2:24 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Pulsed radiofrequency nerve ablation dr NY area?
Replies: 14
Views: 2344

Re: Pulsed radiofrequency nerve ablation dr NY area?

Beverly, yes the nerve block gave me a flare and I did 2 which was a big mistake as the second flare never went back to "normal" and everything has been worse since. Dr. Conway suggested I first undergo my bilateral hip surgery, which was already scheduled and I had find last week. The rig...
by shana
Mon Sep 16, 2013 8:25 pm
Forum: NERVE BLOCKS
Topic: Ganglion Impar Injections
Replies: 6
Views: 1835

Re: Ganglion Impar Injections

Grace, yes, it did give me relief, not 100% relief but I would venture to say 50% relief, I was able to sit for longer periods of time without being in excrutiating pain, so to me, and Dr. Diwan, it's a success. I'm scheduled to have another one the first week in October, depending how that goes I m...
by shana
Mon Sep 16, 2013 10:05 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Pulsed radiofrequency nerve ablation dr NY area?
Replies: 14
Views: 2344

Re: Pulsed radiofrequency nerve ablation dr NY area?

I will most definitely keep you updated, it can be a while until I get to the PRF nerve ablation part but since I did get some relief with the ganglion impar injection we are hoping the ablation will help down the road. First we want to figure out how to get relief in all areas, even if just minimal...

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