Health Organization for Pudendal Education

Hi Merrie, My advice to you would be to think of your life prior to your decrease in health. Think about what you did every day, all day long from the time you woke up until you went to bed. Then think about how your days are now and compare the two. Look at how this condition has affected your life...

Hi Kathy,

I didn't see your post or receive a pm regarding my post with all of my questions (sorry there were so many!)? I'll continue to look for it over the next day or two.

Thanks!

Jen

Kathy, I was wondering if you would mind sharing a little about your trial? -During the trial what type of pain relief did you recieve.....significant...moderate? -How long during the trial did it take for you to feel the relief required (% of relief) to proceed with the implant? -Did you feel numb ...

I had my appointment yesterday regarding an intrathecal pain pump and wanted to give everyone an update. My Doctor gave me the go ahead to proceed with the trial phase part of the protocol for the pain pump. The trial phase is when I will find out if the pain pump will help to reduce my pain. During...

I have been using a cane for almost a year now. Unfortunately, I don’t think it was the best fit for me. I only travel to doctor appointments now, but I find it’s difficult to walk with so much pain and needed something to assist me. I realized I started favoring the side I use my cane with consider...

Meliora, Thank for your kind and encouraging words. The support I’ve received has been wonderful. This condition makes you feel so alone and isolated, like you are the only one "lying in the back of a vehicle” to get to doctor appointments, missing your kid’s activities, having your relationshi...

Helen, I wish you the very best of luck. As you can see with Helen and me, the road can be a long and difficult one when it comes to our disability system here in the US and the UK. It is sad and disappointing, but do not give up. We’ve worked all our lives and I’m sure if you asked anyone on disabi...

My full story is listed in Welcome Center: My Story – Any Thoughts Appreciated I haven’t been able to work since May 2012. I am 41 years old and have worked since I was 18 years old and prior to that I worked at our family business (at the time) from 12 – 18 years old. It never occurred to me I woul...

Bamboo, Dr. Echenberg offers a wide range of treatment options designed to fit each individuals needs. Once you meet with him, he will design a pain management program based on your diagnosis. He offers medications, pudendal nerve blocks, trigger point injections, bladder instillations, physical the...

Hi Everyone, I posted an update regarding my SI Joint Injections in another area of the site. • Board Index • Diagnosis & Treatments • Case Updates & Reviews I’m not sure this was the best place as there were a couple places I thought I could have used. Please let me know if you think it sho...