Health Organization for Pudendal Education

From what I've been reading across the HOPE board, it seems that for surgical/injury causes of PN/PNE, recovery or partial recovery (high function with rigorous management) is more likely than for cases with "unknown" causes of onset. Does anyone know of studies that consider this question?

I finally met Dr Peters in Royal Oak, MI. He's the specialist nearest to me. Dr. Peters listened to my story and agreed that it sounds very much like the source of the misery is the pudendal nerve. He suggested I have an MRI and and then a pudendal nerve block in order to clarify the diagnosis. As I...

Violet, thanks for the information and the contact. I have scheduled a consultation with Dr Peters in Royal Oak, MI. I'm looking forward to learning more.

Cheers,
angel grace

OK, great. HM, nyt, Violet: Your comments are a huge help! HM wrote: Pain from pelvis to toes suggests either spinal pathology in the sacral or lower lumbar, and/ or involvement of the piriformis muscle which can entrap elements of both the pudendal and sciatic nerves simultaneously. I'm seriously t...

In some ways it is helpful to read these comments--I know I'm not crazy. A relief! On the other hand, I'd rather be crazy...

I can say ditto to all especially the blasted burning and leg stinging. Yeah. So you're not alone. I'm not alone.

How's that acceptance cycle working for me?
#painsucks

I had a colonoscopy shortly after my anal pain began--too naïve to be afraid. But shockingly, it didn't make me any worse. I started getting worse a few weeks later but I don't think it was related.

I'm starting to see that the level of debilitation varies among individuals and over time. After 10 months of this PN trial, I cannot sit without ice, no matter the cushion. And I can last on ice for about 10 consecutive minutes. A total of 20 min/day. I can stand for about 20 minutes. I take meds, ...

Yeah. I've been resistant to the idea. But I'm in such terrible pain that I don't know what to do and this is the only thing my docs can come up with. The only other suggestion has been a neurostimulator. I have no idea of the underlying cause and I don't know if I will find out. I don't know why my...

That is really reassuring. The anaesthesiologist I saw likewise has a good reputation and did his homework. He seemed confident, but I was a nervous wreck and chickened out. That was back in May. I'm at the end of my rope now. It is hard to imagine any worsening of pain. But my imagination is someti...

In West Michigan I've not found a doctor who has experience with a CT guided nerve block. I don't want to be their first. Or can anyone do it? Anyone have a positive experience? I'm willing to travel to get it right, but can't go too far for obvious reasons. Desperate with pain. If you have any reco...