Search found 53 matches

by Grace
Tue Aug 05, 2014 7:29 pm
Forum: OTHER THERAPIES
Topic: Lorraine Faehndrich anyone? Pelvic pain coach
Replies: 2
Views: 1704

Re: Lorraine Faehndrich anyone? Pelvic pain coach

I took a class with Lorraine and LOVED it! I think it depends on where you are in your process and what you are looking for from a class. Feel free to PM me if you have any specific questions.
Grace
by Grace
Tue Aug 05, 2014 7:24 pm
Forum: INSURANCE & DISABILITY ISSUES
Topic: In-home assistant or aide
Replies: 1
Views: 2966

In-home assistant or aide

After a year and a half of living with PN, I realize that my pain level is such that I cannot survive without help . I've lived on my own for a few months (away from my spouse and children) and found that I'm insanely exhausted and increasingly flared by adding onto my plate all of the "little&...
by Grace
Mon Nov 04, 2013 9:01 am
Forum: OTHER THERAPIES
Topic: The MELT Method
Replies: 3
Views: 2044

Re: The MELT Method

This is helpful insight. Thank you.
About 4 months of PT-all internal, no functional improvement.
Pain is my symptom. Pain of all sorts limit walking and standing; prohibit sitting.
I'll give it short trial.
by Grace
Mon Nov 04, 2013 12:32 am
Forum: NEUROSTIMULATION
Topic: Dr. Kenneth Peters
Replies: 6
Views: 4047

Re: Dr. Kenneth Peters

Excellent research! Thank you for your work, Violet.
by Grace
Mon Nov 04, 2013 12:29 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: do people with unknown cause of PN recover?
Replies: 23
Views: 4850

Re: do people with unknown cause of PN recover?

Seriously. I don't know how I would maintain sanity without the Forum. Not that I'm 100% sure I am maintaining sanity, but...you know... ;)

Thanks for feedback. I'm thinking of you, Ellie. Peace to you.

angel grace
by Grace
Thu Oct 31, 2013 2:23 am
Forum: OTHER THERAPIES
Topic: The MELT Method
Replies: 3
Views: 2044

The MELT Method

Has anyone tried this method for chronic pain? The website presentation, blog writing, and videos don't inspire confidence, but I think this woman is on to something. As I understand it, the concept is self-treatment with gentle touches that stimulate the "neurofascia." Hmmm... None of the...
by Grace
Tue Oct 22, 2013 8:49 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Internal ice pack! Yeah
Replies: 20
Views: 7058

Re: Internal ice pack! Yeah

For the anal area, my PT suggested Mr Frosty. A surgical glove and fill a single finger (start with pinky!) with water and tie off and freeze. Then be very brave and gentle and self-compassionate, and place it in there--just an inch or so, to your tolerance. Now, don't get the silly idea in your hea...
by Grace
Tue Oct 22, 2013 2:28 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Surgical/injury causes v "unknown" causes
Replies: 4
Views: 1029

Re: Surgical/injury causes v "unknown" causes

K. Thanks. Guess it's just a crap shoot anyhoot?
Only on the down days. Trying to stay positive and grateful. I'm not throwing in the towel today. Tomorrow..? Has enough trouble of its own! ;)
by Grace
Tue Oct 22, 2013 2:23 am
Forum: NEUROSTIMULATION
Topic: Dr. Kenneth Peters
Replies: 6
Views: 4047

Re: Dr. Kenneth Peters

That's encouraging to hear! Thank you.
by Grace
Tue Oct 22, 2013 2:19 am
Forum: MRI/MRN
Topic: Will an MRN decisively identify PN and PNE?
Replies: 4
Views: 1159

Re: Will an MRN decisively identify PN and PNE?

OK thanks! This is really helpful. So I will probably do the set Dr Peters suggested (MRI + Block) and drop the MRN for now. Low on funds so I have to pick and choose just now. So great to hear of another soul presently seeing Peters. Thanks, Richard. May I ask the type of injections you get and how...

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