Health Organization for Pudendal Education

Hi, I just wanted to reply to you to say how sorry I am for your suffering. I don't know how to advise you with your treatment as to what you should do but I just want to say I am disgusted that Dr. Tibet behaved so badly towards you after persuading you to have surgery with him. It is so difficult ...

Hi, I'm wondering if anyone has tried percutaneous tibial nerve stimulation. The lastest neuro I've seen wants to do this treatment and tells me it's effective for PN pain. He wants to try this in combination with Viagra (to increase blood flow) and Lyrica. I see this PTNS is used for interstitial c...

Signed and shared to FB. good luck with getting this daft and inhumane restriction lifted.
Jos

Hi Sam, Sorry you find yourself here. My heart goes out to you for how devastated and alone you feel. (Hugs). we've all been there. Yes there are things that you can do to help and it is treatable. The fact that your symptoms started after you sacrum break and healing suggests that they might be abl...

Thank you Violet. And again my heartfelt gratitude to you for all you do to give help and hope to everyone here.
Jos

Hi Joe, I hope the burning flare after physio is starting to settle now. Ice is your friend. One tip I have found for this is put some uncooked rice in a ziplock bag in the freezer. it conforms to the shape of your body better than ice blocks. Physio on tight muscles does not seem to agree with any ...

Hi Joe, I'm so sorry you are having this to deal with at an age when you should be running around carefree and healthy. Yes this condition can stop you in your tracks from enjoying life and we have ALL been pushed to our emotional and psychological limits many times having to deal with this conditio...

Hi All, I am a 7 year PN veteran and have recently managed to persuade my GP to prescribe Baclofen (after reading here of how some people have found it helpful). I am on the oral med - suppositories are not available here in Ireland. I have had reasonable relief on Cymbalta (allowed me to function w...