Health Organization for Pudendal Education

Hello there. Sorry to hear about your son’s difficulties. I have struggled since my University days so can really feel his pain. You say he was tested for Levator Ani. What was the outcome? It does sound like this or some other kind of pelvic floor dysfunction. He is lucky to have a mum who cares so...

Thanks so much for taking the time to respond to me. It seems you were suffering badly a while back as well. Would you say you have managed to see some improvement? Do you live anything close to a ‘normal’ life now? It’s difficult to get on in the world when you are in the bathroom for 2-3 hours a d...

Hi there. Obvious question, but are you doing anything different at home? Sitting more?

Or do you have more time to think and focus on it at home?

Throughout my battle with what I understand to be pudendal neuropathy, or levator ani syndrome, I have experienced what I call unexpected urgency. In the evenings I will often have only a minor urge to visit the bathroom. However, once the BM has started, things take a significant turn for the worse...

Hello all. It's been some time since I have been on here! Have been trying to cope by not focussing on the issue, but it isn't really working! I have been diagnosed with levator ani, or pelvic floor, dysfunction for about 5 years. Had symptoms for 30. I am not sure if the diagnosis is correct, but I...

Hi Violet! Been through many tests before the levator ani or tight pelvic floor was diagnosed.... Endoscopy etc.... but I don't know if they were looking for any specific or just trying to rule out cancer at the time. Bowel lining looked OK. Have been tested for parasites, but I often wonder if I co...

Actually... I have found swimming helps as well!!!

This is quite interesting as I use exercise quite a lot to improve my symptoms. I have found the only thing that relives pain is a good jog. It starts off painful and awkward, but after a while I feel great and the pain goes. I feel good afterwards as well, until I have my next BM. My biofeedback nu...

Hello guys. Interesting points. Can I ask those who have attended the 'Headache in the Pelvis' clinic how much it cost? Also how intensive it is - 7, 8 hours a day or more? Also, if any of you have heard of anyone who has benefited from it? I guess one of the principles underlying it is the theory t...

Hello all. Again, thanks for all your feedback. Unfortunately, over the last week things have got worse. The amount of time I am spending try to get empty is ridiculous. It has got to the point where I get off the toilet, walk around for a bit and then try again. The fact that I can sometimes pass m...