Health Organization for Pudendal Education

Hi Eliza. I had both pudendal nerves released in Oct 2015. Professor Vancille did the block but it was another surgeon who did the surgery. I had about 70% reduction in the tingling feeling throughout my saddle area. It flicks on and off now and it doesn't always match what I've been doing, but I de...

Hi there, Sorry to hear you are in pain - but this is definetly a good place to read through and find out about all the specific options we have available to us. I know with MRIs that - like Violet said - given they cost so much - make sure that the person doing the MRI knows how to look specificall...

Hi there, I bought a book online called "Living with Pudendal Neuralgia" and it is written by a woman from the UK...called Maragret Stubbs. http://www.amazon.com/Journey-Through-Pudendal-Neuralgia-Learning/dp/1456773720 She mentions the names of some UK based Drs and groups that are aware ...

Hi Dale, I'm so glad you have found this forum.....it is frustrating having a condition that you cannot get validated by the medical community. Thank goodness while you are joining all the dots with what cluster of conditions you may have - you can tap into the specific knowledge of this fellow grou...

Gday Melissa, I strongly recommend you go to www.pudendalnerve.com.au.........it is a website made by a Melbourne lady called Soula and she has a stimulator/implant at the base of her spine. She has pudendal neuralgia and her website is a great resource for global and Australian PN information. Btw ...

Hi Dale, Have you read Soula's webpage called www.pudendalnerve.com.au? She is dealing with WorkCover and is very knowledgable about this area, it's problems and limitations. She lives in Melbourne so it would be good for you to connect with her as she is Australian, has PN from sitting on an office...

Gday Dale,

So sorry to hear you are not well. I wondered if you are following up with botox with Dr Vancille? Thanks. x

Hi Laurina and AdelaideDeb, Wow....you guys are describing my world....and obviously none of us want to be experiencing this debilitating condition....but given that we are....it is SO good to be able to connect with people who can understand this prison, speak this pain language and breath some hop...

Hi Mel,

Congratulations on finding relief from this grotty disorder. I am considering getting Botox on my Pelvic Diaphram by Dr Vancille at WHRIA. Is that were you got it done? I have tried other non surgical methods but it's just not bringing the relief I need. I look forward to your reply. x

Thanks for the advice. I am hestiant to tighten the muscles down there - even if it is in preparation to relax the muscles...... As a female - the exercises my physio has recommended are not suitable for guys but I have read of "reverse kegel exercises" and "dropping the pelvic floor&...