Health Organization for Pudendal Education

I am in the UK, and have done a HUGE amount of research on this PN stuff. DO NOT have surgery in Bristol, try Dr Ruth Lovegrove Jones PHD in pelvic pain physio Southampton. Maria Eliot Harley Stree Physio. helen Keeble Chelsea Physio start off with the least invasive, I have had nothing invasive at ...

Hi Pilot....very interesting I have also become my own researcher in this, no one wants to have anything to do with the pelvic nerves it seems. I am from the UK and an on line newspaper the Daily Mail had a report on a lady with the condition you are taking about and she paid to have surgery in Euro...

Your pelvic floor will be more than likely to tight, so you need to learn the opposite of pelvic floor exercises, and learn to drop and flop the pelvic floor look it up on google.at one point I was having a mini orgasm every time I moved my left leg, walking the dogs for an hour was awful, the mini ...

Yes my PGAD is exactly where you describe it, drives me up the flipping wall.

Hi......Sarajoy, yes I am improved, and yes I am still on antibs although my infection chart is improving, the inside vaginal and rectum burning has gone since the antibs, the ball feeling inside vwgina rectum has also gone, sciatic pain almost gone. I still have PGAD feelings but not as strong, and...

Sounds like the dreaded PGAD, almost identical to me.

Hi.....from the UK I have seen Dr Baronowski for a diagnosise £400.00 an hour privately he is very thorough. He can be seen or one of his team on the NHS 6-9 months wait. Maria Eliot private physio Harley a Street London £120.00 an hour, also Helen Keeble White Hart clinic Chelsea she has a very goo...

I learnt very early on that this PN problem is about the $$$$$$$ or in our case the ££££££££s which I guess is why the NHS is right regards PN and why there is no real treatment on the NHS for it because it is not approved by NICE as a good bet. The cost of physio for a good sports physio £40.00 an ...

Hi Lindsey I am from the UK.........I have PN, however that PN has been caused by an untreated UTI, I am under a Professor in the UK who has been studying lower tract UTIs for forty years, since 1992 he has seen 5000 mainly ladies with so called IC all of those ladies had infections a lot of them ha...

Hi ......I havnt read all,of your post just skimmed it as I am off to bed, but have you tried Physio.......as in Dublin there is a physio called Maeve Whellen or Wellen she is one of the top pelvic pain specialists I would investigate seeing her.