Health Organization for Pudendal Education

"It's time for me to move on" I assume you are leaving the forum and getting with you pain free life. I wish you all the very best, I am going to re-read your threads on this. I am from the UK where treatment of this problem is far far more conservative than the US, as we have the NHS ever...

Hi.....i try to offer what advise I can as I am having pain free days now since it started the beginning of this year. Two years ago I had a minor operation to have polyp removed from my womb, two weeks after that it started to burn when I went for a P, had urine tests clear, carried on with life wi...

If it is PN or some other nerve issue in you pelvic area, it will more than likely be an area of weakness like some peolpe have migraines or IBS, the physio I went to who had PN for two years managed a flight from the UK to Chicago this year that is a few years after PN and was fine, but in the summ...

I can't answer that, as you don't officially have any diagnosise yet, but PN and sitting do not go together there are special cushions out there. You really need to see a specialist physio.

Is it possible to stand for part of the long lectures, I am hugely better than I was but I would never be able to sit that long even before all this PN stuff, sitting for long periods is so bad for us. I can do two hours now pain free tops, but I won't push my luck with any longer.

Hi......appointments can take a while to come through, ring your GP and check it has been sent and to whom, you can then ring up the uros specialist secretary and see if she can give you an idea of when you will get your appointment. The maximum wait is I belive 18 weeks. But I would be off to Dr Ba...

Hi......I can't offer much advise other than, I have gone the conservative route and had no interventions at all other than physio.....my mother has PN and two ladies I have become friendly with they have all had nerve blocks and they are all worse, my mothers bladder has stopped working and she has...

So very sorry for you positive poppy.........a letter to the GMC? perhaps wouldn't go a miss, 100% success rate gosh, what I don't understand is they said your entrapments where so deep so surgery was the only option, but Professor Robert says no one can tell if you are entrapped until they open you...

You need say no more Ezer these say it all $$$$$$. I haven't even had nerve blocks as they aren't what they are cracked up to be from my research, and the long term damage they can do from having to many are just not told to the patients.they know we are desperate and most peolpe will try anything. ...

I went to the pain clinic a month ago the NHNN in London UK, National Hospital for Nurolgy and neurosurgery. I mentioned about going to France for surgery, she said she strongly advises against it as they do not publish the true failure rates, and the way the surgery is done is only laying down more...