Health Organization for Pudendal Education

Hi look up a professor James Malone-Lee. I spoke to you in the summer and completely forget to get back as I had been struggling. He is treating a friend of mine who had your bladder symptons, a year on of intensive treatment she is 85% better. I am going to see him tomorrow, as it is looking like I...

Hi....I have had an MRI Neurography back in March, and I have pelvic venous veins, that are extremely torturous, apparently lots of ladies of my age have these, and I had three large babies. I have PN, PGAD, and IC I have gone down the conservative route and refused nerve blocks, and just had intern...

Hi. Prof Malone is a he. He does a form of testing called broth testingyour dad may no.his ladies are on antibs for up to two years, constantly changing them as e-coli is a very clever bug, and you keep changing the antib to stop it getting resistant to it. He has not had anyone get C-diff with this...

Hi. Infection in the bladder wall is different to a general UTI. It means the infection has literally set up home in the bladder wall, and normal urine testing says its all clear when the infection is still in the bladder wall. If you imagine years and years of paint on a door frame, that is what ha...

Hi, Sarajoy, I am on the forum Rosemary mentions. I have been following your posts from day one as I am almost identical to you, mine was caused by an undiagnosed UTI, pelvic floor went into spasm I was told to do pelvic floor exercises which finished the whole thing off. I now no that we have no ne...

Hi, yes the crawling over feeling some of us do get, it is called "centralisation" the Americans call it "wind up", I had it quite bad but is calming down now , the other nerves join in the party it is all to do with the brain and the central nervous system, that's why the "...

Hi, Trvelisdangerous. I live in the UK. Have you told your parents? If you feel you can that's a good place to start, a problem shared and all that. If your parents can afford for you to go privately, there is Dr Baronowski in London £400.00 for an hour very thorough, he is very PN aware and works a...

I am female, but it is good to understand how it feels for both sexes, I also have PGAD with mine and it is the pits this PN stuff.

My physio is in London Maria Elliot, and she says men recover pretty well with physio, you need to do some research on the web to find a local physio to you who specialise in PN, NHS is pointless you need to go private. Also there is a forum in the UK worth joining as the lady who helps run it is ve...

Hi, I am in The UK and have seen Dr Baronowski in London. Have you tried Physio? are you on any of the nerve pain pills? Hope the nerve block helps, has the a bristol suggested surgery? PN is the pits.