Health Organization for Pudendal Education

I am from the U.K, I don't know if you have PN but Dr Baronowski is the man to see in London, private appointment is £400.00 and will be money well spent. There is also some one on Bristol a Dr Greensdale (sp).

Permanent genital,arousel syndrome, I have it on and off absolutely horrid.

I am in the U.K female. I go to London to see Maria Elliot ( Harley Street ) costs a fortune. I have also seen Dr Baronowski again privately to see him on the NHS would take many months. £400.00 for a very thorough hour.

Hi, I am new here to. My symptoms are identical to yours, there is also a lady in the U.K. I chat to she is also in the same position, and it is the arousel nonsense that drives us MAD. I use a tens machine, and that helps distract quite abit, I am also on a low dose of ami 7.5g and it is wiping me ...

I would love to see Dr Echenberg, but I am from the U.K. He sounds a real old school gentlemen.

My mother and I both have PN, but I am very new to this with very little knowledge, but if there is an inherited weakness like any other condition it must be possible. I really worry for my three daughters, one of which has had an on/off iffy bladder for four years.

Forgot to mention, my mother also has the same Diagnosis from Dr B of PN, but she does not have the PGAD.

Thank you, I have read the article...so much to try and take in. I don't know if he was right with the vaginisms to be honest, as I didn't have trouble with sex or using dilators and the insertion of the speculum at the time. When Dr B examined ( in January )me and touched the nerve on the left hand...

This will be long I think! I am 47 , female in the U.K. My symptoms started about 18 months ago, after I had some uterine polyps removed, after two weeks I noticed it burned to wee various urine samples nothing abnormal. Then summer last year, it felt like I had a tampon stuck, and I had a mild burn...