Health Organization for Pudendal Education

Thank you for the response. I was managing ok for years but there has been an uptick in pain. Scared to do anything. Life goes on.

Hey all, Don't know where to go from here. Had an MRI at the Hospital in New York City on my pelvis. No compression found on my pudendal nerve. Only a slight tear on the ligiment on my left sit bone. A loss. Been 10 years now with hypersentivity to touch the tip of my penis. Normal touch no problem....

Stephanies, I had the PN pain before the laminectomy. I am in the middle of working with a urologist at Stony Brook University. Don't have much confidence in outcome though. I have been to Dr. Chapman in NYC (off of this web site years ago)about a PN nerve block but am scared. I can still have relat...

Hi all, Been years since I have been here. I pretty much gave up on a cure for my condition of hypersensitivity at the tip of my penis. As of this November a new shooting pain down the left side of my shat to the tip has emerged. I said enough and had the MRI of my pelvis done at the Hospital for Sp...

Stephanie, Thanks for the reply. Just went to a urologist to get a script. Would you believe they would not give it to me. They want to check for kidney stones and do a CT scan of my pelvis. So frustrated right now. I guess I will see what happens. Thanks for your concern. I will look into John's Ho...

I believe my last post was about 6 years ago. I have no where to turn so I jumped back in here. Been dealing with glands pain for 10 or so years now. It's changed my life so badly I am at the end of my rope. My penis used to only hurt when lightly touched. I could have sex no problem but when my und...

Could i have my regular urologist prescribe me a proper mri of the pelvic area and then have a pudendal specialist evaluate it? If so what kind of mri should i get? I have penile allydonia.

Fg

I have had prostate injections about 6 years ago that i did not even need. I am afraid my penile allydonia could be because of scar tissue build up in the area.

Fg

Rane,

Go to benzobuddies. They can help. They are a group that helps with benzo and ssri use wd.

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Rane, There is a great group for people having problems with ssri's and benzos. The sight is called benzo buddies. I became dependent on klonopin overnight when I had a bad reaction to corticosteroids. This group helped me through the mess. It took 14 months for my mind to calm down. What a crazy ro...