Health Organization for Pudendal Education

Hi, Just a quick update on my situation after my 5 month treatment with the neurosurgeon: - Had all the scans and bone flicker tests, - Had LP, Rhyzotomy, infiltrations and nerve blocks, - Had a neurostimulator implant where the probes were initially placed between the C3 and C5 vertibrae but with n...

Hi Candice, I sincerely hope you mom managed to get help and that she is much better. Being said that, I am also a South African living with PN for the past 3 years and you know the story. Go from one dr to the next and there is just no light at the end of a very long and dark tunnel. Did she manage...

Hi Everybody! Well, I had a consultation with a neuro surgeon (and had to travel 660km for this) yesterday, and his first response was that he does not think I have PN but more likely coccydymia. I am booked for a series of brain scans, another MRI scan and a lumbar punction next week and then he al...

Hi, I am writing from Mokopane in South Africa and have been on the PN journey for the past 2.5 years. I had my coccyx removed and woke up in excruciating pain. I lost 18kg in 3 days and needless to say I have scant memory of that time. All I do remember is that I was unable to urinate for 2 days an...