Health Organization for Pudendal Education

I just had my compounding pharmacy fill a prescription for a lidocaine/ketamine cream. Cost was $180. The pharmacist types up a note stating that this cream is prescribed and needed for a medical condition. My insurance covers the full amount for all compounded medications when I submit them and att...

Ezer Thank you .... I appreciate your kind words. I just wrote up an hour long success story and had it all wiped out when I tried to post it???? I saved it to a draft and can't find it.... Can anyone help? Anyways just wanted to post where I was entrapped.... "Pudendal nerve to found to be sca...

My statement was that my PNE is 100% better! I am 15 months post op from TG decompression. I feel amazing and yes I am off my meds. I did not post my success story because I have been very slowly weaning off anti-seizures and opioids. I am free and off of these meds for about 3 months now. I do NOT ...

I am so devastated to hear about Dr Hibner.... I pray he will recover from this. I remember very clearly Dr Hibner and my husband talking about their "bikes", my husband rides as well. Dr Hibner has helped me tremendously with PN decompression. I am 100% better from PNE now and I owe it al...

Hi Kathy Natural Calm also comes in "plain"! It is magnesium. You add it to hot water and drink it like a tea. It fizzes up and makes a nice bedtime drink. I've tried the "raspberry-lemon" flavor and the "plain". The raspberry-lemon is wonderful. I buy mine at the local...

Hi Lindsey I am 1 year post op decompression surgery for PNE. I have absolutely no more nerve pain. I do have muscle spasms in the "levator ani" muscle. I feel that my tightening sensation is muscular because the suppositories help. I have also been taught to do my own physiotherapy on thi...

Hi Lindsey Does it feel like a tightening feeling in the vagina? .... But also kind of like an arousal type feeling? I have felt that a few times the past week. I thought my muscles were acting up so I have been using vaginal suppositories baclofen/valium 2x day and they help. You need a prescriptio...

Ezer Of course all surgical patients are told that we are all "truly entrapped". I am only stating a fact. I had no where to turn to in Canada. We have one doctor here that is only PN aware! I had to do all my own research with the help of Hope to find the appropriate treatment for PN. It ...

Hi Stephanie I was prescribed a compounded cream prescribed by Dr Hibner. It reads "versa base cream/ketamine 10%" ... I kept it in the fridge and applied it as needed to my private areas. The cooling effect really helped the broken glass feeling that I had post-op. I also had problems wit...

I am from a country that does not offer any PN surgery (Canada). I researched extensively on my own because there were no "resources" available in this country. I was helped immensely from the forums and resources available on "Hope". I am one of the patients that has greatly ben...