Health Organization for Pudendal Education

Mesenchymal stem cells have the most evidence to support nerve regeneration, and unless things changed recently, I don't believe US clinics are allowed to use MSCs. I've been looking at getting stem cells in Mexico but I doubt many clinics there have any experience with pudendal neuralgia. From what...

I tried to post months ago and it said my IP was blacklisted. Testing now to see if that's still the case.

edit: yay it works!

Have you had any improvements or updates? I’ve been following your story and feel terrible. Also in the same boat but female here After the pandemic the health care system in Canada went from slow to incredibly slow. I contacted a doctor in February and they said they would do another neurostimulat...

Volans, I hope you an find a doctor to image the sacrum. So many of us end up finding out we have Tarlov Cysts, which may or not be the cause of pain, but it’s good to know if they are there. For me, if I had known I probably would not have had PN surgery twice if there was another possibility to e...

However, whenever I start moving (such as walking), and as I remain in motion, my symptoms are greatly reduced. Often to the point where I can not even notice them for the majority of the time. Then as I stop moving and sit down, or lay down, or just stand still, the symptoms typically gradually co...

Volans, Can you get the pelvic MRI looked at by a different doctor who can evaluate the lower part of your spine? Over the last few years, there seems to be more information coming out that issues at the spine can contribute to pelvic pain or pain where the PN innervates. This seems important in yo...

Here's where my symptoms get weird - I do NOT have erectile dysfunction! I can get an erection just fine! And it's not soft either. I'm just numb whether I'm flaccid or erect . And now it gets weirder - my symptoms seem to be based off pressure. When flaccid my penis is not THAT numb but the numbne...

Been a while since I've posted here. In September I had botox to the anal sphincter, but it made no real difference. The odd thing.is I still have difficulty with bowel movements and even passing gas, and they told me the only risk to botoxing that area would be incontinence; and yet I have the oppo...

I paid $457CAD for 100 units of botox, which in USD is something like $340.

I was supposed to get botox this Wednesday, something I had been waiting months for, and it's cancelled as all elective procedures in this hospital are postponed indefinitely. I also have a procedure for a neuromodulator in late April that will most likely be cancelled too as coronavirus cases flood...