Health Organization for Pudendal Education

Hi Capricorn,

Let me know how it goes if you do start taking it.

April

Hi Capricorn, Yes, I have been taking that for 6 or 8 weeks now. I'm a low dose (20 mg), especially given that it's being prescribed for pain. It's a medication that is prescribed for both anxiety/depression and nerve pain (e.g., fibromyalgia patients are sometimes prescribed it). It's always diffic...

Hi SrPudendo, I don't know enough about anatomy to follow the description of what the radiologist found, but I will say that my MRI showed edema on the left side near the intersection of the SS and ST ligaments, exactly where it seemed like the pain originated. And that asymmetric edema was, in my M...

Welcome, Onlysams! Glad to have you here.

April

Yes, that is a great summary. Thanks, Capricorn!

Thanks, Jon. When I considered doing this with him in 2017, insurance didn't cover it because it wasn't a proven technique. It sounded like he was trying to collect data on the procedure to publish his results. I wonder if he's done that by now. I have had significant questions about the procedure, ...

Hi Capricorn, The surgery did reduce the bladder urgency symptoms. I do still get that urgency (in a mild form) when I have pain. They seem to go together. When I have heat or ice on, though, the urgency goes away. And the urgency isn't nearly as problematic as the pain. It's just a small nuisance. ...

I see, Bale. So sorry that Hibner isn't able to figure it out. Let us know how it goes with Dr. Lemos.

April

Hi Mari,

Glad you had such a positive reaction to the treatment. Sorry about the recent flare and the bladder problems. It's so hard to know what will trigger it. Let us know how your next treatment goes.

April

Hi Samson,

Yes, as Violet said, there is life after (and even with) pn. I still have pn pain, but it is now low enough for me to manage. I work full-time in a busy job and have a happy life.

Take care,
April