Search found 32 matches

by tonygret
Wed Apr 13, 2022 2:54 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Kabootie - Best Seat Cusion for PN
Replies: 0
Views: 3516

Kabootie - Best Seat Cusion for PN

First, I am not a shill for Kabootie, and I have no affiliation with them whatsoever. However, I have been using these cushions for years and have been recommending them for years. I just saw a new DO yesterday who had never heard of them, and she will be getting one for herself. I am also making th...
by tonygret
Wed Apr 13, 2022 2:44 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Just spent about $1600 on a Salli stool
Replies: 9
Views: 4454

Re: Just spent about $1600 on a Salli stool

Wow, that stool would be a torture device for me and my condition. Try the Kabootie from Amazon on any chair. I have 3 of them.

My amazon associate link here - https://amzn.to/3MgT9iF
by tonygret
Wed Apr 13, 2022 2:41 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Anyone comfortable in their car?
Replies: 13
Views: 8288

Re: Anyone comfortable in their car?

Before trying to make a seat, the Kabootie from Amazon is the only way I can drive, although for short distances. Give it a try and if it doesn't work you can return it. My amazon associate link for Kabootie - https://amzn.to/3MgT9iF
by tonygret
Wed Apr 13, 2022 2:39 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Mattresses for Bed - Pudendal Nerve issues /Piriformis
Replies: 10
Views: 10690

Re: Mattresses for Bed - Pudendal Nerve issues /Piriformis

Getting a new mattress is very expensive. I went that route without much luck. I then bought a $200.00 mattress topper from Costco, and that did the trick! The good news is if it doesn't work out, you can throw it in your trunk and return it within 30 days. You can also find them on Amazon for as li...
by tonygret
Wed Apr 13, 2022 2:33 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Cushion that does not let tailbone touch
Replies: 1
Views: 1772

Re: Cushion that does not let tailbone touch

I have been using the Kabootie for years. It's the best I found so far. Hope this helps.

https://amzn.to/37MYgqj
by tonygret
Wed Apr 13, 2022 2:31 pm
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Underwear
Replies: 34
Views: 19647

Re: Underwear

I strongly suggest you look into male boxer shorts for the days that appearance isn't an issue. The type they sell at Costco is the best I have tried. Be careful not to get the stretch kind, get the loose kind with the elastic waist band. At some point, this disease requires a rethinking of how you ...
by tonygret
Wed Apr 13, 2022 2:26 pm
Forum: NERVE BLOCKS
Topic: Pelvic Rehabilitation Medicine - Treatment Plan
Replies: 1
Views: 904

Pelvic Rehabilitation Medicine - Treatment Plan

It's been a while since I posted on this site. Sadly, my condition deteriorated after numerous tests, injections, PT, and a bad surgery in France. However, I am always looking for any possible way to reduce this intractable pain without being gullible. I recently moved from California (as tens of th...
by tonygret
Tue Nov 09, 2021 6:27 pm
Forum: NERVE BLOCKS
Topic: New to Florida - Recommendations?
Replies: 0
Views: 1233

New to Florida - Recommendations?

I had a great PN doctor in California, but I have moved to Vero Beach Florida and can't sem to find anyone near here who does PN blocks or ablations. Does anyone know of a doctor within an hours drive of this city? Thanks!
by tonygret
Mon Jan 27, 2020 8:12 am
Forum: SURGERY
Topic: Individual doctor Success/ Failure Rates
Replies: 6
Views: 2237

Re: Individual doctor Success/ Failure Rates

Unfortunately, the only statistics are from the doctors themselves. Just because they may have published them in journals, does not make them accurate. The only way to have real numbers is through a independent review of every doctor who does these surgeries, which due to cost and indifference, will...
by tonygret
Wed Jan 01, 2020 9:09 am
Forum: NEUROSTIMULATION
Topic: Successful Neuromodulator trial
Replies: 12
Views: 5620

Re: Successful Neuromodulator trial

So happy this worked for you. Can you please offer the name of the doctor, location and contact information. Thank you.

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