Health Organization for Pudendal Education

Violet, It was not hard to get into Dr. Frank Feigenbaum. He was however booked out 8 weeks. He also does free phone consultations, if you send him your MRIs. The free consultation has a 4-6 month wait, but it's free and you don't have to travel to Dallas. He runs the Tarlov Cyst Institute and is on...

Hello Everyone, I haven't posted on here in a few months. I have gone through an up and down roller coaster ride with the medical industry. To give you a little background, I have had PN symptoms for 6-7 years and I was officially diagnosed with PN in July or August of this year. I had several other...

Should I be getting an xray or MRI? I have no imaging of my coccyx. The Dr dxed it by moving it and feeling it. Will he be able to see it during the nerve block with the live xray?

Thanks Again,
Jayda

Violet, I've only been offered the nerve block for the coccyx. If I think back, I would guess that I beyond it about 6 years ago in a fall (I couldnw sit for weeks). I believe I broke it a second time lifting things that were way to heavy for me. As afterwards I couldn't sir for weeks again. When I ...

Thank You Violet! You were also correct on the coccyx being a separate issue. It turns out I have a Greenstick fracture in my coccyx and it's actually moving around.

Thanks for all the advice!

Violet, I wanted to let you know that my Physical Therapist thinks I have Ehlers-Danlow Syndrome and that is what's causing my S.I. Joint Problems. My S.I. Joints have started popping (subluxating?) again. I score an 8 on the Beighton Score. I'm still getting pretty good relief from the Pudendal Ner...

Violet, Thank you so much! You have given me very good ideas. I really appreciate all the brain storming you did for me. I just got home just over am hour ago from a bilateral pudendal nerve block. I went from a steady 7 to a 4. I am still having flares however they are down from an 8/9 to a 6(so no...

Violet, I'm really going to try to make a long story as short as possible. The first time everything came in I'm not really sure about. My back pain started at 16, had pain when standing for a couple hours at work, lumbar back spasms that woke me in the night. It all started when trying to "swa...

Violet, I didn't answer all your questions, sorry for that. The pain is both sides but significantly worse on the left, worth the PN, the SIJD as well as Sciatica on the left. I have been to numerous back drs and none know why I have the Sacroiliitis or arthritis/scoliosis. I honestly believe that w...

I can't thank you both enough for your replies. Just knowing there are people out there who understand what this is like. Johan, I absolutely LOVE ice. It is simply amazing, between the ice and baths, i am able to make it through the day. Thank you for your recommendation! I truly hope PT helps you....