Health Organization for Pudendal Education

Hi Cade,

Thanks so much for letting me know what you do for work. I will probably be emailing you soon to ask you more about that!

Thanks,

Buttercup

Hi, I am curious to know if anyone has ideas for jobs that can be done from home? I'm specifically asking about work-from-home jobs b/c I need to be close to a bathroom and have access to stand, walk, and lay down as needed throughout the day. (A job that is in an office would not work, as this is w...

Hi NYT, Ok thank you very much. I actually already had my hearing a few months ago and have not heard anything back yet on a decision from the judge. (I'm assuming that this is not a good sign since I have heard of people getting approved during their hearings.) If I do end up with an approval I wil...

Thanks Violet and NYT. My providers are all in NYC and I live in NJ. So my thought is do I move to NY? Although they are all out-of-network still anyway, but at least I would have access to some doctors at good NYC hospitals. NYC is very expensive though so I don't think moving there is realistic fo...

Hi Members, I am reaching out to speak with anyone who is currently on a marketplace/Obamacare insurance plan through the state in which they live. I will be losing my COBRA insurance benefits (through the plan I had with my old employer) very soon and so I need to choose a plan on the open marketpl...

Hi Violet,

I just noticed that you posted a link to this article about the perineal branch of the PN. Is this the surgery you had?

Thanks,

Buttercup

Hi Joe,

You should see a hernia specialist and a hip specialist to see if you have any underlying undiagnosed hernias or potentially a hip issue (labral tear, impingment, arthritis) that is causing your pain patterns.

~ Buttercup

Hi PKGal, Thanks so much for posting. I just joined this forum a few months ago in order to try and figure out if I could gather any helpful information from others on here. I have had the PN pain for 9 years. I just recently found out last year that I have a hip issue (impingement and labral tear) ...

Hi shljk,

Did you find out more information about your hips? Are you going to get surgery?

I'm still weighing the FAI surgical option myself.

Thanks,

Buttercup

Hi Pearl, I would not just assume that your nerves are damaged right off the bat. It's very likely that your entire pelvic floor is in mass spasm -- meaning that it's more of a muscle problem potentially. Once you start PT, you will get a better idea of what is going on down there. Good luck with PT...