Health Organization for Pudendal Education

Most people get Pregabalin / Lyrica and Cymbalta - and I just try to figure out why my doctor doesn't changed that when i got no further recovery the last 2,3 months.. In 10 months the PN got 50% better with Gabapentin and Saroten, so maybe it's the right way to stick to that therapy because it help...

I've heard different people react to different meds so it takes some time to find the right mixture. I was put on various different meds that did nothing for me before I got on Lyrica & Cymbalta and they, as a combination, worked pretty well. Lyrica, Cymbalta, clonazepam and benzos have been th...

I have been on Pregabalin for nearly three years & Tapentadol for nearly two. I didnt think they helped until I stopped taking them & I swiftly found that they do. Albeit, not enough. Tapentadol is a 'controlled' medication in the U.K. & Im told is quite expensive. I am not sure how thi...

You can get your genes tested to see if you metabolize drugs in an unusual manner. Several opioids are metabolized through the liver, lots going through the CYP2D6 pathway. Many people of European ancestry have issues with the CYP2D6 pathway. Just one example, if you do have problems with this path...

Depending on your genetics, opioids may or may not help ease neuropathic pain. For me it took some of the edge off the pain but didn't take it completely away. I started taking opioids about 1 year after the pain started. In the US there are many people who abuse drugs so doctors are reluctant to p...

Can you go to a physical therapist in your area who specializes in treating pelvic disorders? This was the SINGLE most beneficial thing I did to overcome my pudendal neuralgia episode. I was in physical therapy for almost two years, and please believe me it helped. You must be able to learn to rela...

Violet M wrote:Yes, it can still heal. I remember one forum member, a woman, who had successful PNE surgery after 15 years of pain.

Violet

Wow and I'm already desperate at 10 months although it got about 50 % better since then!
Thanks for that info, makes me hope : )

Hello forum members! I've been into that cruel illness now over 10 months and didn't get painkillers till now.. I just wanted to know who got painkillers and after what time? What did you get, did that medicament changed over the time - and did it help? I know there are a lot people still struggling...

Today I was at a painkiller doctor and we started acupuncture. We try that for a bit and if that doesn't help we start with electrostimulation acupuncture! When i asked him if that nerve can heal or recover after already 10 month, he said it's a long time, it's possible but he doesn't know ... i tho...

Maybe your doctor feels the nerves will heal over time and does not want to do anything that might damage it further. So maybe it is reasonable to try the medication for a bit and see if you will heal. As far as exercise, it is what got me into trouble, so I think it might be wise to proceed with c...