Search found 333 matches

by A's Mommy
Tue Jan 03, 2012 12:04 am
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: PLEASE SIGN THIS PETITION TO THE ASPN on PNE!!!
Replies: 9
Views: 2627

PLEASE SIGN THIS PETITION TO THE ASPN on PNE!!!

Please sign this petition for the upcoming American Society for Peripheral Nerve meeting. Our goal is to get as many signatures as possible. Please do not "double sign." http://www.ipetitions.com/petition/bringing-awareness-of-pudendal-nerve-entrapment-to/ THE UPCOMING MEETING OF THE AMERI...
by A's Mommy
Mon Dec 26, 2011 7:39 pm
Forum: NEWS & UPDATES
Topic: Hielp for severe anal rectal pain
Replies: 14
Views: 5547

Re: Hielp for severe anal rectal pain

kathyd, First wanted to say, I am so sorry you are struggling with this. I do, too, on and off. It is always unfortunately present in some shape or form during the day. I wanted to ask you why your surgeon said it was "collateral sprouting". Collateral sprouting really is just regeneration...
by A's Mommy
Mon Dec 26, 2011 7:32 pm
Forum: MEDICAL ADVANCES & EDUCATION
Topic: 10 Day Outpatient Ketamine
Replies: 14
Views: 5955

Re: 10 Day Outpatient Ketamine

VERY Helpful information, NYT!!! I am in the process of trying to go to Cleveland Clinic to get this done, but everything there is OON, so the appeals start.... Would love to do it with my caring new Pain doc in Pittsburgh, but no protocol is in place anywhere in Pittsburgh, so he has to argue FOR t...
by A's Mommy
Sun Dec 18, 2011 9:29 pm
Forum: SURGERY
Topic: Any dorsal nerve decompression successes?
Replies: 40
Views: 10272

Re: Any dorsal nerve decompression successes?

God bless you guys and thanks for all the prayers and thoughts.

I'm looking forward to my Ketamine tx... Hopefully they will be scheduled soon
by A's Mommy
Wed Dec 14, 2011 4:47 pm
Forum: SURGERY
Topic: Any dorsal nerve decompression successes?
Replies: 40
Views: 10272

Re: Any dorsal nerve decompression successes?

Dear flyer Prof Aszmann told me that it is much easier to reach the whole of the Alcocks canal on women due to a wider infrapubic angle. It is not so easy on the male due to the anatomy. I will see of I can find his email and post it on the forum. To all: wish me luck and prayers as I'm headed to a ...
by A's Mommy
Wed Dec 07, 2011 3:34 am
Forum: SURGERY
Topic: Dr Dellon
Replies: 169
Views: 36098

Re: Dr Dellon

Something has t o be done. Was just talking w/ Ali and we just don't understand why there aren't more success stories.
by A's Mommy
Wed Dec 07, 2011 2:21 am
Forum: SURGERY
Topic: Dr Dellon
Replies: 169
Views: 36098

Re: Dr Dellon

So, do you guys think I have a better chance? I had surgery w/ Aszmann 6 wks ago. My area of pain matched exactly Potter's MRI. I have a causative factor (childbirth/episiotomy tear). The incisions were not in the same area as Lotta Nerve's Dellon surgery. Griff, do you have pics from your surgery? ...
by A's Mommy
Tue Dec 06, 2011 4:26 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Dr. Hibner - 3 Day Ketamine Infusion and Me
Replies: 38
Views: 9789

Re: Dr. Hibner - 3 Day Ketamine Infusion and Me

I can't believe that I have developed RSD/CRPS. I had symptoms of this all along after my Hibner surgery. Maybe even started before... can't remember. But it is definitely worse now after the recent surgery. What can I do to stop the flare up? I've been water walking 4 x a week. I am determined!!! N...
by A's Mommy
Mon Dec 05, 2011 3:03 am
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: Dr. Hibner - 3 Day Ketamine Infusion and Me
Replies: 38
Views: 9789

Re: Dr. Hibner - 3 Day Ketamine Infusion and Me

NYT Having increased RSD symptoms lately.... esp. leg burning, noticing it in both limbs, left leg worse, discoloration especially after showers. Reduced pudendal pain but increased RSD sx.... just don't get it... only 5 wks out though.... doing everything i can... water walking, etc. Looking for tr...
by A's Mommy
Fri Dec 02, 2011 3:12 pm
Forum: SURGERY
Topic: Any dorsal nerve decompression successes?
Replies: 40
Views: 10272

Re: Any dorsal nerve decompression successes?

Additionally, for all that have inquired. My dorsal branch was not a problem. I have the operative report although it is in German so I can't really make it out. However, based on what Prof. told me my nerve was entrapped in scar tissue as it exited Alcock's canal. When my nerve was injured, the per...

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