Health Organization for Pudendal Education

I had posted this on TIPNA as well, but thought I could get a response here too. Dear friends, I hope everyone had a warm and loving Thanksgiving. I have read so many contradicting things about myelin sheath regeneration. I am assuming that if my nerve was compressed and entrapped (which it was; in ...

How did your visit go with Dr Conway? Regarding surgery, it is a difficult question at best. My wife has been suffering for 2.5 years and had three surgeries over the past 16 months (long story). Has she been suffering with PNE? Sorry if you posted this before somewhere else. Was she treated by Dr....

Hi everyone, Didn't have to time to thoroughly review each abstract, but since I thought I had "IC" for so long, turns out I'm still on their emailing list, and this link was brought up along with this blurb: Likely because of work of French pudendal nerve entrapment syndrome pioneer Profe...

Pianogal,

You know my feelings on this. I'm all for helping you create more slogans. However, my hubby wants the one he created trademarked.

LOL

Love you all.

Happy Thanksgiving,

AM

What I want to do is continue with my PT for now, schedule a MRI with DR Potter and see what the results are. If there is no entrapment or problem and my current PT doesn't improve my pain, then I want to travel to Jerry Hesch. If there is entrapment and some kind of surgery is needed I would proba...

Hi dear Karyn, I know I was just a unilat, but I actually was permitted to lie down in my husbands lap during take off, with no seat belts!! The wheelchair ride through the airport was hellish, though. In hindsight, I should have taken more percocet, but when hubby was wheeling me, I was in so much ...

Quite frankly, I think I deserve an Emmy for pulling off working fulltime. :lol: There are precious few people who know there's anything wrong with me at all. I don a pleasant, positive attitude everyday and I've got a cheerful smile plastered on my face. People don't want to interact with you when...

Hi HerMajesty!!!

You are such a trooper (and brave for trying this new treatment!!) I'm curious: was this conference in Vegas and is there a website for it?

Love,
A's Mommy

Hi there, Your wife's symptoms sound almost identical to what I've experienced. Especially with the bladder thing and the whole IC workup and the PT trial. I feel so bad for her. I am a young mother and it's agony when you feel like you can't be there for your family. It is so honorable that you are...

Dear Krista, Please see a PN specialist ASAP if you are getting worse with PT. I got so much worse over the 4 months 2x a week of pelvic floor PT that I remember in one session I just said "hey, if I really have an ENTRAPPED NERVE, is any amount of PT going to release it?" and when she sai...