Health Organization for Pudendal Education

Well, I ended up "thinking" there HAD to be some type of pelvic pain meeting going on in the US because Dr. Hibner is out of town, then someone else posted Dr. Conway was also out of town and I spoke to Loretta and she said she would see Hibner this weekend so then I just put it all togeth...

Hello all!! Check out the schedule for the annual IPPS meeting in Chicago, IL! Some of our PNE physicians and PTs are presenting. www.pelvicpain.org I'm sure the ones that may not be presenting are certainly attending! Some noteworthy speakers include: Michael Hibner, MD, PhD Richard Marvel, MD Step...

Griff, Thanks for posting your MRI results. Based on your scan, I do have to agree with the other posters that perhaps the radiologist was not as skilled as Dr. Potter in imaging or reading the pudendal nerves. Good idea to call Dr Potter's office. You are on the right track. I think Potter's MRI is...

Wow, HerMajesty, VERRRY INTERESTING!!! All my PTs and Docs to date haven't had much to say about my fractured coccyx. They said a lot of women have it from vaginal childbirth. I really wonder if this is truly contributing to some of my pain as well. I will bring it to my PT (when I go back to PT som...

Allie

I can hear the desperation in your voice (even though you are "online", so to speak.)

Please get to someone who knows about PN as soon as possible.

I am praying for you.


A's Mommy ((((HUGS))))

Dear Catherine Thank you for your response! It surely helped me and I'm sure it will help others. I have not yet had the decompression. I will have it with Dr. Hibner in Phoenix, AZ via the TG approach. He did the Botox injections under general anesthesia into the left side. I was very sore for appr...

You know, that is just NOT RIGHT!!! There are so few PNE doctors in this country and they just need to talk with us!!! I know they are busy and all, but we are paying good money flying all over the country and it's not our fault that we live in podunk America where there aren't any PNE specialists!!...

MRI of the pelvis MRI of the pelvis was performed utilizing coronal fast inversion recovery, followed by coronal, sagittal, axial and oblique axial fast spin echo techniques followed by postcontrast axial fat suppressed oblique axial T1-weighted sequencing. Concern is pudendal nerve entrapment, part...

Kamu, I'm so encouraged that you seem to be doing a bit better. Praise God! Today's one of those "bad" days for me. I'm confused, doubting God, doubting the Word, and everything else. I know these are all LIES from the enemy. God promised me my healing. I have to hold onto it. I'm wonderin...

Catherine, You've had Botox right? Did you ever have one sided injections only? I recently had Botox into my left side only and now I have random right side PNE symptoms! Is it because my left sided muscles are now paralyzed and the right side is picking up the slack? What do you (or anyone else) th...